A formative study exploring perceptions of physical activity and physical activity monitoring among children and young people with cystic fibrosis and health care professionals

  title={A formative study exploring perceptions of physical activity and physical activity monitoring among children and young people with cystic fibrosis and health care professionals},
  author={James Shelley and Stuart J. Fairclough and Zoe R. Knowles and Kevin W. Southern and Pamela McCormack and Ellen A. Dawson and Lee E F Graves and C A Hanlon},
  journal={BMC Pediatrics},
BackgroundPhysical activity (PA) is associated with reduced hospitalisations and maintenance of lung function in patients with Cystic Fibrosis (CF). PA is therefore recommended as part of standard care. Despite this, there is no consensus for monitoring of PA and little is known about perceptions of PA monitoring among children and young people with CF. Therefore, the research aimed to explore patients’ perceptions of PA and the acceptability of using PA monitoring devices with children and… 
Perceptions of barriers to and facilitators of physical activity in adults with cystic fibrosis.
The comprehensive study of the barriers and facilitators of PA in adults with CF with heterogeneous severity will enhance PA counseling for pwCF and help improve their compliance with PA recommendations.
Barriers and facilitators to physical activity among children, adolescents, and young adults with cystic fibrosis: a systematic review and thematic synthesis of qualitative research
This systematic review provides detailed information on the physical (biological—clinical), psychological, social and environmental influences on physical activity behaviour, thus providing numerous targets for future interventions.
Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals
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Post-COVID Heroes: Physical Education Teachers’ Role in Sports and Physical Activity in Jamaica
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Accuracy of the ActivPAL and Fitbit Charge 2 in measuring step count in Cystic Fibrosis.
The ActivPAL and Fitbit Charge 2 demonstrated acceptable validity for step count measurement in CF and can be used for tracking PA during interventions in people with CF.
Exercise and Cystic Fibrosis.
This chapter will review the latest research progress about exercise in CF and describe how exercise alone can be used as an ACT (airway clearance technique), which promotes the removal of mucosal cilia.
Verisense Validation According to the V3 Validation Framework
This paper summarizes the validation that has been performed for the Verisense Inertial Measurement Unit (IMU) remote monitoring sensor, which utilizes the open source GGIR analysis platform to
Utility of Fitbit devices among children and adolescents with chronic health conditions: a scoping review
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"CF chatters": the development of a theoretically informed physical activity intervention for youth with cystic fibrosis
The findings suggest that behavioural counselling is an effective modality for enhancing physical activity participation and quality of life in this life limited group of children and youth.
"No time to play": perceptions toward physical activity in youth with cystic fibrosis.
Perceptions toward physical activity in 14 youth with CF at a Canadian Hospital are explored and recommendations for developing physical activity interventions, including the particular need to ensure that such interventions are not perceived as wasteful of time are provided.
Exercise and Habitual Physical Activity for People With Cystic Fibrosis: Expert Consensus, Evidence-Based Guide for Advising Patients
Evidence-based recommendations from an international group of experts in the area of exercise for CF are presented to guide practitioners toward the goal of regular, appropriate habitual physical activity, exercise and sports for all patients with CF.
Physical activity assessment in cystic fibrosis: A position statement.
Factors that influence adherence to exercise and their effectiveness: Application to cystic fibrosis
Factors likely to increase compliance in this population of patients with cystic fibrosis include explicit and continued encouragement and support from the family and healthcare team, and the introduction of behavior‐changing strategies.
Experiences of physical activity: A phenomenological study of individuals with cystic fibrosis
A central theme of ‘self-monitoring’ emerged from the accounts and was embedded in the three super-ordinate themes.
Motion sensors for monitoring physical activity in cystic fibrosis: what is the next step?
There is currently insufficient evidence to recommend the use of motion sensors as clinical assessment tools or as endpoints in clinical trials of interventions to improve physical activity, and motion sensors should only be used as a research tool where their effectiveness can be evaluated.
A survey of exercise testing and training in UK cystic fibrosis clinics.
Bone health, daily physical activity, and exercise tolerance in patients with cystic fibrosis.
The most active patients with better exercise capacity had higher BMD, and those with more affected pulmonary function had a greater prevalence of vertebral fractures and dorsal kyphosis.
"There's nothing I can't do – I just put my mind to anything and I can do it": a qualitative analysis of how children with chronic disease and their parents account for and manage physical activity
It is suggested that for these children and young people, having a chronic disease was not perceived as a barrier to participation in organised sport and recreational activities and was enabled by the high level of parental support and background planning involved in managing their child's health care needs.