A family genetic risk communication framework: guiding tool development in genetics health services

@article{Wiens2012AFG,
  title={A family genetic risk communication framework: guiding tool development in genetics health services},
  author={Miriam E. Wiens and Brenda J Wilson and Christina R Honeywell and Holly A Etchegary},
  journal={Journal of Community Genetics},
  year={2012},
  volume={4},
  pages={233-242}
}
Family communication of genetic risk information is a complex process. Currently, there are no evidence-based interventions to help genetics professionals facilitate the process of disclosure within families. This study was designed to create a framework to assist in the development of tools to support patients in communicating genetic risk information to family members. A systematic review identified the factors relevant in communicating genetic risk information in families. A guiding theory… CONTINUE READING

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The impact of presymptomatic predictive testing for Huntington’s disease on partners and marital relationships: secrets, lies and truths

  • AM Bruce, J Semper, SA Simpson
  • Proceedings of the World Congress on Huntington’s…
  • 2003
Highly Influential
6 Excerpts

The messenger's dilemmas - giving and getting information in genealogical mapping for hereditary cancer

  • V Adelsward, L Sachs
  • Health Risk Soc
  • 2003
Highly Influential
9 Excerpts

The transfer of information about genetic transmission to brothers and sisters of parents with a CF-child

  • L Denayer, K De Boeck, G Evers-Kiebooms, H Van den Berghe
  • Birth Defects Orig Artic Ser
  • 1992
Highly Influential
3 Excerpts

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