A different life: caring for an adolescent or young adult with severe cerebral palsy.

@article{Burkhard2013ADL,
  title={A different life: caring for an adolescent or young adult with severe cerebral palsy.},
  author={Agnes Burkhard},
  journal={Journal of pediatric nursing},
  year={2013},
  volume={28 4},
  pages={357-63}
}
Mothers of children with severe functional disabilities often assume roles that exceed the normative activities of parenting in relation to the intensity, complexity, and temporal nature of the family caregiver experience. This phenomenologic inquiry explored the lived experience of caregiving among mothers caring for an adolescent or young adult with severe cerebral palsy. Data were collected through semi-structured interviews with 11 mothers and analyzed using van Manen's approach. Analyses… CONTINUE READING

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