A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom

@article{Palimaru2017ACO,
  title={A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom},
  author={Alina Ionela Palimaru and William E. Cunningham and Marcus Dillistone and Arturo Vargas-Bustamante and Honghu Liu and Ron D. Hays},
  journal={Quality of Life Research},
  year={2017},
  volume={26},
  pages={3143-3155}
}
PurposeTo identify which aspects of life are most important to adults with spinal cord injury (SCI) and compare perspectives in the United States and the United Kingdom.MethodsWe conducted 20 in-depth interviews with adults with SCI (ten in the US and ten in the UK). Verbatim transcriptions were independently analyzed line-by-line by two coders using an inductive approach. Codes were grouped into themes about factors that constitute and affect quality of life (QOL).ResultsFive overarching… 
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References

SHOWING 1-10 OF 50 REFERENCES
Exploring quality of life following high spinal cord injury: a review and critique
TLDR
Analysis of QOL research undertaken among people with all levels of SCI demonstrates that dissatisfaction with life following injury arises primarily from social disadvantage, however, little research has been conducted specifically to ascertain perceptions ofQOL amongPeople with high SCI.
Quality of life of individuals with spinal cord injury: a review of conceptualization, measurement, and research findings.
  • M. Dijkers
  • Medicine, Psychology
    Journal of rehabilitation research and development
  • 2005
TLDR
Three different yet linked approaches toQoL conceptualization are reviewed: QoL as subjective well-being; Qo l as achievement; and Qol as utility.
Managing fatigue following spinal cord injury: A qualitative exploration
TLDR
This study identifies many of the necessary elements of a fatigue management programme to meet the specific needs of people with SCI; and ascertains important indicators of a successful programme from the perspectives of those who must live with the outcomes.
Quality of life of spinal cord injured patients in Taiwan: a subgroup study
TLDR
The quality of life index (QLI) was calculated by multiplying the satisfaction score with the importance score, then dividing by the possible highest score, and found that the subjects had mild to moderate dissatisfaction with most items in five domains except psychosocial adjustment.
Quality of life and traumatic spinal cord injury.
Correlates of life satisfaction among persons with spinal cord injury.
  • M. Dijkers
  • Medicine, Psychology
    Archives of physical medicine and rehabilitation
  • 1999
Quality of Life as Defined by Adults with Spinal Cord Injuries
TLDR
Although the examination of quality of life is recognized as an essential aspect in the field of rehabilitation research, lack of a clear definition ofquality of life and measurement issues remain problematic.
The quality of life of three functional spinal cord injury subgroups in a Swedish community
TLDR
This study on all 56 subjects representing 3 distinct functional subgroups, out of a consecutive series treated at a Spinal Unit, explored the skills used in a wide range of community living activities and the details of these subjects' quality of life (QL).
Factors associated with the quality of life of long-term spinal cord injured persons.
...
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