A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom

  title={A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom},
  author={Alina Ionela Palimaru and William E. Cunningham and Marcus Dillistone and Arturo Vargas-Bustamante and Honghu Liu and Ron D. Hays},
  journal={Quality of Life Research},
PurposeTo identify which aspects of life are most important to adults with spinal cord injury (SCI) and compare perspectives in the United States and the United Kingdom.MethodsWe conducted 20 in-depth interviews with adults with SCI (ten in the US and ten in the UK). Verbatim transcriptions were independently analyzed line-by-line by two coders using an inductive approach. Codes were grouped into themes about factors that constitute and affect quality of life (QOL).ResultsFive overarching… 
Preferences of adults with spinal cord injury for widely used health-related quality of life and subjective well-being measures
Understanding what HRQOL and SWB measures are valued by adults living with SCI can lead to selection of informative instruments, which could help clinicians to complement and tailor established care and rehabilitation protocols for individual needs.
Assessing Health-Related Quality of Life and Subjective Well-Being in Adults with Spinal Cord Injury
This dissertation contributes to the scholarship on health outcomes among individuals with spinal cord injury by developing and psychometric evaluation of a Fatigability Index for full-time wheelchair users with SCI and developing an instrument assessing physical and mental fatigability.
Is Self-Efficacy Related to the Quality of Life in Elite Athletes after Spinal Cord Injury?
Involvement in an environment that was important to the injured person before the accident, in either a passive or active form, promotes a greater sense of self-efficacy and good QoL, regardless of the time that has passed since the accident and despite high levels of pain or secondary health issues.
'Coming home does not mean that the injury has gone'-exploring the lived experience of socioeconomic and quality of life outcomes in post-discharge trauma patients in urban India.
The different socioeconomic and QOL outcomes that trauma patients have experienced during their recovery were explored to identify emerging themes within the range of different experiences of the participants across gender, age, and mechanism of injury.
Quality of Life after Spinal Cord Injury: A Multiple Case Study Examination of Elite Athletes
The results of the research indicate that these people are characterized rather by a positive sense of quality in life, and the way they function in a difficult situation is an inspiration to others.
Clinical practice guidelines for acute and post-acute care of patients with spinal cord injury: a scoping review protocol
This work aims to summarise and critically evaluate existing CPGs for the care of patients with SCI at the acute and post-acute phase of their care, and to identify gaps in guidance for nursing and multidisciplinary care.
Quality-of-life after cholecystectomy in Kazakhstan and Sweden: comparative study based on the GIQLI questionnaire.
There were large differences in perceived QoL, even when taking indication for surgery and approach into account, which may be explained by differences in attitudes to health status and treatment expectations.
TWIICE One powered exoskeleton: Effect of design improvements on usability in daily-life as measured by Cybathlon race performance
The latest design and results of testing of TWIICE One 2018, one of the competing devices in the 2020 Cybathlon race, are presented to help understand which features had a positive impact on real life performance of the device.
TWIICE One powered exoskeleton: effect of design improvements on usability in daily life as measured by the performance in the CYBATHLON race
Background Spinal cord injury leading to paraplegia affects the mobility and physiological well-being of one in a thousand people. Powered exoskeletons can temporarily restore the ability to walk.


Exploring quality of life following high spinal cord injury: a review and critique
Analysis of QOL research undertaken among people with all levels of SCI demonstrates that dissatisfaction with life following injury arises primarily from social disadvantage, however, little research has been conducted specifically to ascertain perceptions ofQOL amongPeople with high SCI.
Quality of life of individuals with spinal cord injury: a review of conceptualization, measurement, and research findings.
  • M. Dijkers
  • Medicine, Psychology
    Journal of rehabilitation research and development
  • 2005
Three different yet linked approaches toQoL conceptualization are reviewed: QoL as subjective well-being; Qo l as achievement; and Qol as utility.
Managing fatigue following spinal cord injury: A qualitative exploration
This study identifies many of the necessary elements of a fatigue management programme to meet the specific needs of people with SCI; and ascertains important indicators of a successful programme from the perspectives of those who must live with the outcomes.
Quality of life of spinal cord injured patients in Taiwan: a subgroup study
The quality of life index (QLI) was calculated by multiplying the satisfaction score with the importance score, then dividing by the possible highest score, and found that the subjects had mild to moderate dissatisfaction with most items in five domains except psychosocial adjustment.
Quality of life and traumatic spinal cord injury.
Correlates of life satisfaction among persons with spinal cord injury.
  • M. Dijkers
  • Medicine, Psychology
    Archives of physical medicine and rehabilitation
  • 1999
Quality of Life as Defined by Adults with Spinal Cord Injuries
Although the examination of quality of life is recognized as an essential aspect in the field of rehabilitation research, lack of a clear definition ofquality of life and measurement issues remain problematic.
The quality of life of three functional spinal cord injury subgroups in a Swedish community
This study on all 56 subjects representing 3 distinct functional subgroups, out of a consecutive series treated at a Spinal Unit, explored the skills used in a wide range of community living activities and the details of these subjects' quality of life (QL).
Factors associated with the quality of life of long-term spinal cord injured persons.