A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care

@article{Allori2017ASS,
  title={A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care},
  author={Alexander C Allori and T. Kelley and J. Meara and A. Albert and K. Bonanthaya and Kathy Chapman and M. Cunningham and J. Daskalogiannakis and Henriette de Gier and A. Heggie and C. Hernandez and O. Jackson and Yin Jones and L. Kangesu and M. Koudstaal and Rajiv Kuchhal and A. Lohmander and R. Long and L. Magee and L. Monson and Elizabeth R. Rose and Thomas J Sitzman and J. Taylor and G. Thorburn and S. van Eeden and C. Williams and John O. Wirthlin and K. W. Wong},
  journal={The Cleft Palate-Craniofacial Journal},
  year={2017},
  volume={54},
  pages={540 - 554}
}
  • Alexander C Allori, T. Kelley, +25 authors K. W. Wong
  • Published 2017
  • Medicine
  • The Cleft Palate-Craniofacial Journal
  • Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes- particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international… CONTINUE READING
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