A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.

@article{Allori2017ASS,
  title={A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.},
  author={Alexander C Allori and Thomas E. Kelley and John G. Meara and Asteria Albert and Krishnamurthy Bonanthaya and Kathryn Annette Chapman and Michael L. Cunningham and John Daskalogiannakis and Henriette de Gier and Andrew A. C. Heggie and Cristina Hernandez and Oksana A Jackson and Yin Jones and Loshan Kangesu and Maarten J. Koudstaal and Rajiv Kuchhal and Anette Lohmander and Ross E. Long and L. Joseph. Magee and Laura A. Monson and Elizabeth R. Rose and Thomas J. Sitzman and Jesse Adam Taylor and Guy Thorburn and Simon van Eeden and Christopher W Williams and John O Wirthlin and Karen W.Y. Wong},
  journal={The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association},
  year={2017},
  volume={54 5},
  pages={
          540-554
        }
}
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international… CONTINUE READING
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  • 2018
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