A Critical Lens on Dementia and Design in HCI

@article{Lazar2017ACL,
  title={A Critical Lens on Dementia and Design in HCI},
  author={Amanda Lazar and Caroline Edasis and Anne Marie Piper},
  journal={Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems},
  year={2017}
}
Designing new technologies with and for individuals with dementia is a growing topic of interest within HCI. Yet, predominant societal views contribute to the positioning of individuals with dementia as deficient and declining, and treat technology as filling a gap left by impairment. We present the perspective of critical dementia as a way of reflecting on these views in the context of recent epistemological shifts in HCI. In addition to articulating how HCI can leverage the perspective of… 

Figures from this paper

Approach Matters: Linking Practitioner Approaches to Technology Design for People with Dementia
TLDR
The importance of tracing epistemological understandings of dementia to different configurations of technology for people living with dementia and a practical guide to support designers to do so is discussed.
Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia
TLDR
The findings from a long-term ethnographic study are presented, which aimed to gain an understanding of their lived experience and inform design practices for and with people with advanced dementia in residential care.
Intersections in HCI, Design and Dementia: Inclusivity in Participatory Approaches
TLDR
This workshop will explore how to negotiate the need for inclusion, personalisation, and scalability to accommodate the growing needs in dementia and set an inclusive agenda for developments in Design and HCI in the 'here and now' to build sustainable approaches for the future.
Bridging the Gap: Design for Intergenerational Engagement in Dementia Care
TLDR
This chapter discusses design processes and outcomes from bespoke technologies, which encourage intergenerational engagement and challenge perceptions in dementia care, and introduces examples of the technologies designed and evaluated in this context.
HCIxDementia Workshop: Engaging People Living with Dementia
TLDR
The second CHI HCIxDementia workshop will focus on engagement with and by people living with dementia, and attendees will explore design possibilities through interactions with local community organizations and peopleliving with dementia.
Designing Sentic: Participatory Design with People Living with Dementia
TLDR
The design process of Sentic, a music player with an interface that can be tailored to fit its users’ needs is presented, which shows the potential of tailoring interactions so that they support and maintain autonomy and facilitate personal access to technology, for people with dementia.
Active involvement of people with dementia
TLDR
It is reflected that people with dementia can influence the development of technology in regards to content, design, and even the initial idea, although the impact on how they experience their own involvement remains largely unknown.
Exploring Media Capture of Meaningful Experiences to Support Families Living with Dementia
TLDR
A research through design approach working closely with families living with dementia in order to create personalised media experiences focusing on individuality, relationships, and accepting changed realities is presented.
Active Involvement of People with Dementia: A Systematic Review of Studies Developing Supportive Technologies
TLDR
It is reflected that people with dementia can influence the development of technology in regards to content, design, and even the initial idea, although the impact on how they experience their own involvement remains largely unknown.
Reflections on Using Proxies in Supporting the Voice of People with Dementia in HCI Research
  • Medicine
  • 2020
TLDR
The HCI literature on designing for dementia care is evolving, and strategies for using proxies will help better support the voice of people with dementia, and better interpreting participants’ voice through enhancing verbal and nonverbal communication is discussed.
...
1
2
3
4
5
...

References

SHOWING 1-10 OF 104 REFERENCES
Empathy, participatory design and people with dementia
TLDR
The development, application and evaluation of a design method tailored for working with people with mild to moderate dementia is described, which modified participatory design techniques to foster respectful engagement with participants in the development of a digital aid to facilitate "safe walking".
User Involvement in Dementia Product Development
This article is in two parts. The first part describes the design of new assistive technology for people with dementia developed within the ENABLE project, with designs coming from both personal and
Creative and Opportunistic Use of Everyday Music Technologies in a Dementia Care Unit
TLDR
Everyday technologies in use in a long-term dementia care ward are described, and the importance for interaction design for dementia in appreciating the role of active creative participation in sustaining personhood in dementia is highlighted.
Designing for the Third Hand: Empowering Older Adults with Cognitive Impairment through Creating and Sharing
TLDR
This work draws on the concept of the "Third Hand," a practice in art therapy in which the therapist attunes to and enables the desires of the client during interaction, to understand how to empower creative work and sharing among older adults with cognitive impairments.
Safe walking technology for people with dementia: what do they want?
TLDR
There is a need to reconsider "surveillance" as a concept on which to base design of safe walking technology, and implications for design ethics are discussed.
A design-led inquiry into personhood in dementia
TLDR
This work uses personhood to explore how relationships bring agentive potential to experience-centered design through a co-creative, design-led inquiry with Gillian, a woman living with dementia, and John her husband.
Identifying User Needs and the Participative Design Process
TLDR
The results of this first project phase show that, in general, the people with mild dementia as well as their carers were able to express and prioritize their (unmet) needs, and the kind of technological assistance they preferred in the selected areas.
Constructing Dementia and Dementia Care
TLDR
The study indicates the need for training at a deep and reflective level in which the new culture of person-centred dementia care becomes part of daily practice rather than a distant ideal.
Designing a multimedia conversation aid for reminiscence therapy in dementia care environments
TLDR
Project CIRCA (Computer Interactive Reminiscence and Conversation Aid), utilizes interactive multimedia to stimulate long-term memory to prompt verbal and non-verbal communication and can contribute significantly to 'quality of life' in dementia care environments.
Enabling self, intimacy and a sense of home in dementia: an enquiry into design in a hospital setting
TLDR
An enquiry into design for dementia facilitated by a public art commission for an adult mental health unit in a hospital in the UK and informed by the notion of personhood in dementia is presented.
...
1
2
3
4
5
...