22q11 deletion syndrome: Parents' and children's experiences of educational and healthcare provision in the United Kingdom.


22q11 deletion syndrome (22q11DS) is a genetic syndrome, prevalence around 1:4000-1:6000 live births, with a complex array of associated features, impacting on healthcare and educational support. This study reports the perceptions of families and individuals with 22q11DS in relation to these needs. Individuals and families of those with 22q11DS were… (More)
DOI: 10.1177/1367493516686203


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