“This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals

  title={“This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals},
  author={Debbie Spain and David Mason and Simone J Capp and Laura Stoppelbein and Susan W White and Francesca Happ{\'e}},
  journal={Research in Autism Spectrum Disorders},

Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults

The authors' results indicate rather diverse experiences within the group of autistic participants across all domains of life, and in comparison with non-autistic adults, autistic adults reported less negative impact on their social life and morenegative impact on health and support services.

Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies

The need to consider the child’s autistic characteristics and interests to implement emergency accommodations and services was highlighted.

Delivering Psychological Services for People with Learning Disabilities during the Covid-19 Pandemic: The Experiences of Psychologists in the UK

ABSTRACT Introduction People with learning disabilities (PWLD) have been disproportionately impacted by the Covid-19 pandemic, with reports of significant impacts on psychological wellbeing. Services


Children with ASD are uniquely vulnerable to the disruption caused by COVID-19 pandemic, and implementation of structured multi-level and multicomponent child/parent-centered interventions are of paramount importance to mitigate the effect of the pandemic on this vulnerable population.

Autism Diagnostic Assessments With Children, Adolescents, and Adults Prior to and During the COVID-19 Pandemic: A Cross-Sectional Survey of Professionals

The pandemic has potentially compounded existing bottlenecks to the autism diagnostic pathway and there is a general openness to using this method (potentially in a hybrid telehealth—in person model), provided rigor and standardization are enhanced.

Telehealth Autism Diagnostic Assessments With Children, Young People, and Adults: Qualitative Interview Study With England-Wide Multidisciplinary Health Professionals

A shift to telehealth meant that autism diagnostic services remained operational during the COVID-19 pandemic, and this method of working has potentially affected the parity of service, with people presenting with clinical complexity having to potentially wait longer to be seen or given a diagnostic opinion.

The impact of COVID-19 Lockdown on Children with Autism Spectrum Disorder and their families in Tripoli, Libya

Children with existing behavioural problems and those with ASD in particular had faced additional social and educational challenges during their special education years and had experienced the most negative consequences of living in a stressful situation like home lockdown, and are therefore had been particularly hard hit by COVID-19 pandemic.

Brief Report: Covid Restrictions had Positive and Negative Impacts on Schooling for Students on the Autism Spectrum

The COVID-19 pandemic (2020) resulted in school closures and changes to school delivery. The aim of this study was to explore how these changes impacted on children on the autism spectrum. As part of

ASDesign: A User-Centered Method for the Design of Assistive Technology That Helps Children with Autism Spectrum Disorders Be More Independent in Their Daily Routines

COVID-19 has posed new physical and mental challenges for the population worldwide, establishing social and structural changes in the labor market that could be maintained and implemented

Experiences of student and trainee autism researchers during the COVID‐19 pandemic

The COVID-19 pandemic has affected students and trainees, including those in autism research, in different ways and a set of recommendations for faculty, especially mentors, to support students andTrainees as well as strategies for students to bolster their self-advocacy, both of which are seen as crucial for their future careers.



Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress

It was found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID‐19 experience, or less frequent hope for the future reported the greatest negative impacts, and less perceived benefit of online services also predicted later distress.

The psychological impact of the COVID-19 pandemic on adults with autism: a survey study across three countries

An increase in depression and anxiety symptoms in response to the COVID-19 pandemic for both the non-autism and the autism group, which was greater for adults with autism, highlighting the psychological burden of the pandemic on adults with Autism.

Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey

The impact of the COVID-19 pandemic on ASD individuals was investigated, whether any pre-pandemic sociodemographic or clinical characteristics would predict a negative outcome, and to narratively characterize their needs.

Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis

An online survey of families in Michigan revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19.

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

It behooves to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts.

Examining the impact of COVID‐19 in ethnically diverse families with young children with intellectual and developmental disabilities

It is suggested that parents of young children with IDD report significant challenges at home during the pandemic, and professional support, especially during the reopening phases, will be critical to support family well‐being and child developmental outcomes.

An Expert Discussion on Autism in the COVID-19 Pandemic

This roundtable aims to bring together autistic adults, their families, practitioners, and academics across the fields of disability rights, public health, medicine, psychology, and mental health across different countries and contexts to identify and discuss the challenges and opportunities that the COVID19 pandemic poses autistic Adults, incorporating a variety of perspectives.

Prevalence and Associated Factors of Emotional and Behavioural Difficulties during COVID-19 Pandemic in Children with Neurodevelopmental Disorders

Children and young people (CYP) with neurodevelopmental disorders (NDDs) may be particularly vulnerable to adverse mental health effects due to the COVID-19 pandemic, and showed higher levels of parent-reported mental health problems than comparable cohorts pre-CO VID-19.

Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

It is found that most individuals with an autism spectrum disorder experienced significant, ongoing disruptions to therapies and while some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit.

Towards a Treatment for Intolerance of Uncertainty in Young People with Autism Spectrum Disorder: Development of the Coping with Uncertainty in Everyday Situations (CUES©) Programme

Data regarding retention, acceptability and feasibility indicate that the parents valued the programme, and effect size analyses of outcome measures for potential use in larger trial indicates that the programme has promise as a treatment option of people with ASD and IU.