“It’s Not Like Judgment Day”: Public Understanding of and Reactions to Personalized Genomic Risk Information

@article{Gordon2011ItsNL,
  title={“It’s Not Like Judgment Day”: Public Understanding of and Reactions to Personalized Genomic Risk Information},
  author={Erynn S Gordon and Georgia Griffin and Lisa Wawak and Hauchie Pang and Sarah E Gollust and Barbara A. Bernhardt},
  journal={Journal of Genetic Counseling},
  year={2011},
  volume={21},
  pages={423-432}
}
The value of genomic risk assessment depends upon patients making appropriate behavioral changes in response to increased risk leading to disease prevention and early detection. To date, few studies have investigated consumers’ response to personalized genomic disease risk information. To address this gap, we conducted semi-structured interviews with 60 adults participating in the Coriell Personalized Medicine Collaborative. The interviews took place after receiving results providing genomic… CONTINUE READING

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