[Spanish patients with central hypoventilation syndrome included in the European Registry. The 2015 data].

@article{Teresa2017SpanishPW,
  title={[Spanish patients with central hypoventilation syndrome included in the European Registry. The 2015 data].},
  author={Mar{\'i}a Angeles Garc{\'i}a Teresa and Raquel Porto Abal and Silvia Rodr{\'i}guez Torres and Diego Garc{\'i}a Urabayen and Silvia Garc{\'i}a Mart{\'i}nez and Ha Diem Trang and Angel Campos Barros and Ana Mar{\'i}a Llorente de la Fuente and A H Gonzalez and Amaya Bustinza Arriortua and Jes{\'u}s de la Cruz Moreno and Mart{\'i} Pons {\`O}dena and Purificaci{\'o}n Ventura Faci and Laura Rubio Ortega and Estela P{\'e}rez Ruiz and Antonio Aguilar Fern{\'a}ndez and Amaya P{\'e}rez Oc{\'o}n and Borja Osona and Isabel Delgado Pecell{\'i}n and Ignacio Arroyo Carrera and Javier Sayas Catal{\'a}n and Elvira Gonz{\'a}lez Salas and Carlos Martin de Vicente},
  journal={Anales de pediatria},
  year={2017},
  volume={86 5},
  pages={255-263}
}
INTRODUCTION Congenital Central Hypoventilation Syndrome (CCHS) is a very rare genetic disease. In 2012 the European Central Hypoventilation Syndrome (EuCHS) Consortium created an online patient registry in order to improve care. AIM To determine the characteristics and outcomes of Spanish patients with CCHS, and detect clinical areas for improvement. MATERIALS AND METHOD An assessment was made on the data from Spanish patients in the European Registry, updated on December 2015. RESULTS… CONTINUE READING
Recent Discussions
This paper has been referenced on Twitter 4 times over the past 90 days. VIEW TWEETS
1 Citations
0 References
Similar Papers

Similar Papers

Loading similar papers…