[Quality of life in patients with unusual diseases: experience of nurses at the clinical research center for unusual diseases Aldo e Cele Daccò].


The Information Centre for Rare Diseases (CIMR) of the Mario Negri Institute, has promoted a specific study on quality of life of patients with Takayasu's arteritis, a chronic vasculitis with unclear etiology, that affects primarily aorta and its main branches. The aim of the study is to assess the QoL of Italian Takayasu's arteritis patients referring to… (More)


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