'If you're gonna die, you're gonna die': Young adults' perceptions of sudden unexpected death in epilepsy.

@article{Harden2015IfYG,
  title={'If you're gonna die, you're gonna die': Young adults' perceptions of sudden unexpected death in epilepsy.},
  author={Jeni Harden and Anissa Tonberg and Richard F. M. Chin and Ailsa E Mclellan and Susan Duncan},
  journal={Chronic illness},
  year={2015},
  volume={11 3},
  pages={230-41}
}
OBJECTIVES To explore the views and experiences of young adults with epilepsy on the risks associated with, and information giving in relation to sudden unexpected death in epilepsy (SUDEP). METHODS In-depth interviews with 27 young adults (aged 18-29 years) with epilepsy. RESULTS Participants reported everyday experiences of seeking to control the risk of seizure occurrence or injury from seizures. In contrast, SUDEP was reported in more fatalistic terms as a risk that was considered to be… CONTINUE READING
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