"My baby is a person": parents' experiences with life-threatening fetal diagnosis.

@article{CtArsenault2011MyBI,
  title={"My baby is a person": parents' experiences with life-threatening fetal diagnosis.},
  author={Denise C{\^o}t{\'e}-Arsenault and Erin Denney-Koelsch},
  journal={Journal of palliative medicine},
  year={2011},
  volume={14 12},
  pages={
          1302-8
        }
}
Diagnosis of a lethal fetal diagnosis (LFD) early in pregnancy is devastating for parents. Those who choose to continue with the pregnancy report intense emotional reactions and inconsistent, often insensitive treatment by health care providers. This qualitative descriptive study sought to clarify the experiences and needs of families in order to design responsive perinatal palliative care services, and to establish the feasibility and acceptability of conducting intensive interviews of… 
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''My Baby Is a Person'': Parents' Experiences with Life-Threatening Fetal Diagnosis
"Have no regrets:" Parents' experiences and developmental tasks in pregnancy with a lethal fetal diagnosis.
Parents’ Experiences With Ultrasound During Pregnancy With a Lethal Fetal Diagnosis
TLDR
Providers of obstetrical care can improve communication with parents with LFDs at critical time periods by matching their interaction to parents’ needs.
“Love Is a Choice”: Couple Responses to Continuing Pregnancy With a Lethal Fetal Diagnosis
TLDR
Findings indicate that individual responses to these stressful pregnancies were inherent in who was physically pregnant, choosing whether to love and embrace the unborn baby, personal characteristics, and the strength of the couple relationship.
Life-limiting fetal conditions and pregnancy continuation: parental decision-making processes
TLDR
Findings from a larger longitudinal, naturalistic study of parents’ experiences of continuing pregnancy with an LLFC expand on the literature on parental decision making around the numerous types of decisions after LLFC, informing obstetrics, neonatology and palliative care.
"This pregnancy makes sense": Experiences of women who have decided to continue pregnancy after lethal fetal diagnosis.
TLDR
This study explored the experiences of women in Poland who actively decided to continue with the pregnancy after diagnosis of severe developmental disorders and identified four themes: pregnancy as an experience of prenatal motherhood; the child as person; birth as encounter and farewell; and the mother experience in retrospect.
Anencephaly; the maternal experience of continuing with the pregnancy. Incompatible with life but not with love.
Advances in Pediatrics and Neonatal Care
TLDR
Parental motivations to continue pregnancies diagnosed prenatally as LLFD are centered on the early bond with the unborn baby, the consideration of his or her full existence as a person, and the prevention of future regrets.
Experiences and outcomes following diagnosis of congenital foetal anomaly and medical termination of pregnancy: a phenomenological study.
TLDR
The experiences of pregnant women who receive a diagnosis of chromosomopathy and/or foetal malformation during a prenatal check-up and who decide to legally terminate the pregnancy are determined and described.
Women's Experiences With Palliative Care During Pregnancy.
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