"All at sea": the experience of living with cystic fibrosis.

  title={"All at sea": the experience of living with cystic fibrosis.},
  author={Melanie Jessup and Camillus Parkinson},
  journal={Qualitative health research},
  volume={20 3},
In this qualitative study the researchers explored living with cystic fibrosis (CF)-a chronic, life-threatening, life-limiting disease that demands a relentless regime of daily treatment. The unique challenges and issue for care that CF presents were considered. Utilizing a phenomenological perspective, data drawn from unstructured interviews included narratives and drawings contributed by children, adolescents, young adults, and parents-eight families representing nine young people with CF. In… CONTINUE READING