Tina Krügel

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The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that(More)
I. Einleitung Humangenetische Forschung ist aus der Medizin nicht mehr wegzudenken. Immer mehr Veränderungen des Erbguts werden identifiziert und für die Wahl neuer Therapieansätze oder für die Suche nach möglichen Krankheitsursachen analysiert. Gleichzeitig enthalten genetische Informationen aber weitere Auskünfte über den Spender wie seine Abstammung,(More)
In order to protect the privacy of participating patients in multicentric genetic research projects and to improve the working conditions for researchers in such projects a data protection framework needs to be installed. In the first place, all genetic data processed in the project has to be pseudonymized. In addition to that, contracts have to be(More)
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