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PURPOSE We investigate why clinicians experience problems interpreting implantable cardioverter-defibrillator (ICD) data when the patient is absent, and we explore how to re-introduce patients into the socio-technical setup of telemonitored interpretation practices. METHOD An action research study with a design interventionist perspective was conducted to(More)
This paper introduces the concept of the "participatory patient" as a vehicle to promote attention to patients' dual enactment of participation on participatory design (PD) projects in healthcare. By an empirical case-story from an ongoing PD project in healthcare, I illustrate the relationship between a patient's work on the project as a co-designer and(More)
The emergence of patient-centered eHealth systems introduces new challenges, where patients come to play an increasingly important role. Realizing the promises requires an in-depth understanding of not only the technology, but also the needs of both clinicians and patients. However, insights from medical phenomenology bring forth how physicians and patients(More)
Research on design of IT traditionally treats the production of scholarly knowledge and the design of new systems as related, but separate processes. We propose the fruitfulness of practicing a closer relation informed by interventionist design research (appreciating a problem through attempts at solving it) and actor network theory (reality is enacted and(More)
As Participatory Design (PD) moves into healthcare distinct practical issues emerge. We argue that PD researchers need to respond to these new challenges by establishing an ongoing dialogue on the practicalities of e.g. prototyping in healthcare. With this workshop we intend to start such reflections by focusing on practical issues of prototyping, such as(More)
This paper presents three distinct challenges to research and development (R&D) of marketable eHealth systems and suggests strategies to mitigate them. The eHealth system in question is designed to improve self-care and collaboration between remotely monitored heart failure patients and clinicians. By way of introspection and reflection on a current and(More)
This paper delves into the challenges of engaging patients, clinicians and industry stakeholders in the participatory design of an mHealth platform for patient-clinician collaboration. It follows the process from the development of a research prototype to a commercial software product. In particular, we draw attention to four major challenges of (a)(More)
People living with Parkinson's disease engage in self-care for most of the time but, two or three times a year, they meet with doctors to re-evaluate the condition and adjust treatment. Patients and (informal) carers participate actively in these encounters, but their engagement might change as new patient-centred technologies are integrated into healthcare(More)
3 4 The 'international reports on socio-informatics' are an online report series of the International Institute for Socio-Informatics, Bonn, Germany. They aim to contribute to current research discourses in the fields of 'Human-Computer-Interaction' and 'Computers and Society'. The 'international reports on socio-informatics' appear at least two times per(More)
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