Susan M C Gibbons

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The advent of large-scale, population genetic databases (PGDs) in several countries around the world marks a significant development in human DNA banking and genetic research. The European countries that have led the way in the development of PGDs are Iceland, Sweden, Estonia and the U.K. In legal terms, the emergence of PGDs has been far from(More)
This paper provides an introduction to a collection of five papers, published as a special symposium journal issue, under the title: "Governing Genetic Databases: Collection, Storage and Use". It begins by setting the scene, to provide a backdrop and context for the papers. It describes the evolving scientific landscape around genetic databases and genomic(More)
Modern biobanking is highly complex. Its complexity and diversity are increasing at an astonishing rate. Medical, computing, and other related technologies all are developing apace. The prevalence of biobanks, the rich variety of ways in which they may be used and combined, and the sheer number and range of people wishing to access and use them are rapidly(More)
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