Stuart W. Grande

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Increasingly, people with diverse health conditions turn to social media to share their illness experiences or seek advice from others with similar health concerns. This unstructured medium may represent a platform on which individuals with severe mental illness naturally provide and receive peer support. Peer support includes a system of mutual giving and(More)
BACKGROUND Patient-centered health care is a central component of current health policy agendas. Shared decision making (SDM) is considered to be the pinnacle of patient engagement and methods to promote this are becoming commonplace. However, the measurement of SDM continues to prove challenging. Reviews have highlighted the need for a patient-reported(More)
The perspective of the patient, also called the "patient voice", is an essential element in materials created for cancer supportive care. Identifying that voice, however, can be a challenge for researchers and developers. A multidisciplinary team at a health information company tasked with addressing this issue created a representational model they call the(More)
BACKGROUND The phenomenon of patients covertly recording clinical encounters has generated controversial media reports. This study aims to examine the phenomenon and analyze the underlying issues. METHODS AND FINDINGS We conducted a qualitative analysis of online posts, articles, blogs, and forums (texts) discussing patients covertly recording clinical(More)
clearer with pictures': using community-based participatory research to design and test a Picture Option Grid for underserved patients with breast cancer. ABSTRACT Objective: Women of low socioeconomic status (SES) diagnosed with early stage breast cancer experience decision-making, treatment and outcome disparities. Evidence suggests that decision aids can(More)
BACKGROUND Efforts have been made to measure integration in health care delivery, but few existing instruments have adopted a patient perspective, and none is sufficiently generic and brief for administration at scale. We sought to develop a brief and generic patient-reported measure of integration in health care delivery. METHODS Drawing on both existing(More)
OBJECTIVE To examine the motivations of patients recording clinical encounters, covertly or otherwise, and why some do not wish to record encounters. DESIGN Mixed-methods analysis of survey data and nested semistructured interviews. SETTING Survey to UK audience, using social media and radio broadcast. PARTICIPANTS 168 survey respondents, of whom 161(More)
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