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The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassaemia major
Religion is believed to have a significant impact on individuals from minority ethnic groups when making decisions about prenatal genetic screening, prenatal diagnosis and termination of pregnancy.Expand
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Attitudes towards prenatal diagnosis and termination of pregnancy for thalassaemia in pregnant Pakistani women in the North of England
Most births of children affected with β‐thalassaemia major in the United Kingdom are to parents of Pakistani origin. A popular explanation for this is that Pakistanis decline termination of pregnancyExpand
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Attitudes to prenatal testing and termination of pregnancy for fetal abnormality: a comparison of white and Pakistani women in the UK
To compare the attitudes of women from two different ethnic backgrounds to prenatal testing for a range of conditions, and to see if “clusters” of attitudes to different conditions could beExpand
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Decisions About Testing and Termination of Pregnancy for Different Fetal Conditions: A Qualitative Study of European White and Pakistani Mothers of Affected Children
The aim of this study is to explore reasons for and against prenatal testing and termination for a range of conditions in women from two different ethnic backgrounds. A total of 19 Pakistani andExpand
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Hoping to Live a “Normal” Life Whilst Living with Unpredictable Health and Fear of Death: Impact of Cystic Fibrosis on Young Adults
This study aimed to explore the hopes and fears of young adults with cystic fibrosis (CF). Fifteen young adults with CF, aged 18–29, were interviewed about their hopes and fears using a groundedExpand
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Antenatal thalassaemia carrier testing: women's perceptions of 'information' and 'consent'
Objectives: To explore the attitudes of a sample of pregnant women in the UK towards informed consent for antenatal thalassaemia carrier testing and perceived pre-test information needs for suchExpand
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‘Balance’ is in the eye of the beholder: providing information to support informed choices in antenatal screening via Antenatal Screening Web Resource
Objectives  The Antenatal Screening Web Resource (AnSWeR) was designed to support informed prenatal testing choices by providing balanced information about disability, based on the testimonies ofExpand
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'All is done by Allah'. Understandings of Down syndrome and prenatal testing in Pakistan.
Understanding the psychosocial impact of a congenital condition such as Down syndrome on affected individuals and their family requires an understanding of the cultural context in which they areExpand
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Islam and development: opportunities and constraints for Somali women.
  • S. Ahmed
  • Medicine, Sociology
  • Gender and development
  • 1 March 1999
This article describes the effects of the rise of Islamic extremism on women's lives in Somalia since the early 1990s. Throughout the conflict and afterwards, Somali women's organizations inExpand
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Midwives' perceptions of their role as facilitators of informed choice in antenatal screening.
OBJECTIVE to explore midwives' perceptions of their role as facilitators of informed choice in antenatal screening. DESIGN qualitative. SETTING community midwives, Yorkshire and Humber region,Expand
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