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FindZebra: A search engine for rare diseases
tl;dr
We design an evaluation approach for web search engines for rare disease diagnosis which includes 56 real life diagnostic cases, performance measures, information resources and guidelines for customising Google Search. Expand
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  • 4
  • Open Access
Specialized tools are needed when searching the web for rare disease diagnoses
In our recent paper, we study web search as an aid in the process of diagnosing rare diseases. To answer the question of how well Google Search and PubMed perform, we created an evaluation frameworkExpand
  • 11
  • 1
  • Open Access
Data breach at IEEE.org: 100k plaintext passwords
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Rare Disease Diagnosis as an Information Retrieval Task
tl;dr
We consider rare disease diagnosis as an IR task, and ask what design considerations are needed to build an IR system that clinicians can use to diagnose rare diseases. Expand
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  • Open Access
Considerations for the development of task-based search engines
tl;dr
We present a list of suggestions and ideas for an Information Retrieval (IR) framework that could inform the development of next generation professional search systems. Expand
  • 3
  • Open Access
Zebra: Searching for Rare Diseases A Case of Task-Based Search in the Medical Domain
Task-based search addresses situations where standard offthe-shelf Information Retrieval (IR) technology may not suffice to satisfy users in their tasks. In these situations, IR systems should beExpand
  • 3
  • Open Access