Learn More
This qualitative study investigated the process of engagement in HIV medical care from the perspective of people living with HIV/AIDS (PLWHA). In-depth interviews were conducted with 76 participants in six cities. All participants were considered underserved because of histories of substance use, mental illness, incarceration, homelessness, or cultural(More)
This multisite, qualitative study examined the process by which persons living with HIV/AIDS (PLWHA) engage in primary HIV medical care for treatment. Using a grounded theory approach, the analysis of narrative data from semi-structured in-depth interviews with PLWHA (n = 76) led to the development of a model describing a cyclic process of engaging in--and(More)
In an era of limited resources for mental health care, family interventions need to target areas where they are responsive to families' expressed needs. Although family burden has been documented, less is known about the areas of concern that families feel they need direct assistance with, to be effective caregivers. Telephone interviews were conducted with(More)
Despite advances in the medical treatment of HIV disease, marginalized populations continue to shoulder a disproportionate burden of HIV/AIDS-related morbidity and mortality. This study explored the process by which clients at HIV-oriented primary care clinics transition from being sporadic users of care to engaging as regular users of care. A model(More)
PURPOSE To identify barriers to family care in psychiatric settings and to describe family and provider perspectives about what constitutes effective family care. DESIGN AND METHODS A qualitative exploratory approach with focus groups. Seventy-eight people participated in 11 focus groups conducted with families, patients, and health professionals. (More)
Despite decades of research documenting family burden related to mental illness of a relative, little is known about families' responses over time. A grounded theory study was designed to describe families' responses to these severe mental illnesses. Twenty-nine participants representing 17 families were interviewed 3 times over 2 years. Interviews were(More)
BACKGROUND Few health-related questionnaires have been translated into American Sign Language (ASL), precluding Deaf adults from full participation in health-related research. OBJECTIVES To translate self-report measures (written English) into sign language and to evaluate the equivalence of the ASL versions to the original English versions of the(More)
Grief and bereavement following the death of a loved one present clients with significant challenges to the physical, emotional, and spiritual health and well-being. The grieving process for the person with HIV infection may be compounded by shame, stigma, and lack of social support. For communities with the highest prevalence of HIV infection, AIDS-related(More)
Deaf gay men represent a subpopulation of the gay male community at particularly high risk for HIV/AIDS due to numerous barriers including language, stigma, and inequitable access to health services. The participants in this exploratory pilot study (N = 5) struggled with the ongoing threat of HIV infection and the pervasive nature of AIDS-related(More)
  • R K Mallinson
  • 1999
The gay male communities of the United States have experienced the most AIDS-related deaths over the longest period of time. The burden of grief for these men is unique and largely unaddressed in nursing research and practice. This phenomenological study explored the lived experiences of six HIV-negative gay men with AIDS-related multiple losses. The(More)