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OBJECTIVE To involve users in the development of a research bid to examine parents' experiences of having a pre-term baby, and to examine the barriers, enablers and impacts of user involvement. DESIGN A mainly collaborative approach to user involvement was adopted, although different types of involvement were evident at different stages of the project.(More)
Background and objective The birth of a preterm infant can be an overwhelming experience of guilt, fear and helplessness for parents. Provision of interventions to support and engage parents in the care of their infant may improve outcomes for both the parents and the infant. The objective of this systematic review is to identify and map out effective(More)
BACKGROUND The concept of family-centred care in neonatal practice has become increasingly recognised internationally. The underlying philosophy puts parents and the family at the centre of health care and promotes "individualised, flexible care." AIMS To develop the first international model of family-centred care based on strong parental collaboration(More)