Monica J. Mitchell

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PURPOSE The purpose of this study was to examine perceived barriers to clinic attendance and strategies to overcome these barriers for adolescents with sickle cell disease. MATERIALS AND METHODS This was a 2-phased study, which used focus groups (n=13) and individual semistructured interviews (n=32) with adolescent patients (aged 13 to 21 y) from 3(More)
OBJECTIVE This study assessed parent report of mealtime behavior and parenting stress in preschoolers with type 1 diabetes. It was hypothesized that children with type 1 diabetes would be seen as exhibiting more mealtime behavior problems and that their parents would evidence greater parenting stress when compared with healthy subjects. It was also(More)
OBJECTIVE The aims were to describe and compare generic family functioning in children with five different chronic conditions and healthy comparisons, and to examine the relations between family functioning and sociodemographic variables. METHODS A secondary data analysis from six independent studies including 301 children (cystic fibrosis: n = 59;(More)
This study examined family functioning at mealtime, a context relevant to the management of cystic fibrosis (CF). Thirty-three families of children with CF and a control sample of 33 families of children without a chronic illness were assessed. Family functioning was rated during a videotaped dinner using the McMaster Mealtime Interaction Coding System(More)
OBJECTIVE To examine, using direct observation methodology, differences in family functioning at mealtime between families of school-age children with cystic fibrosis (CF) and families of school-age children without a chronic illness. METHOD Family functioning was rated using the McMaster Mealtime Interaction Coding System (MICS) during a videotaped(More)
OBJECTIVE To examine functioning during a dinner meal in families of a child with a chronic illness that requires dietary treatment recommendations, as compared to families of a child without a chronic illness. METHODS Ratings of seven dimensions of family functioning on the McMaster Mealtime Family Interaction Coding System (MICS) were obtained on 29(More)
BACKGROUND Parents of infants and toddlers with cystic fibrosis (CF) report problematic mealtime behaviors. Controlled studies that examine parent and child mealtime behaviors in infants and toddlers with CF using objective, observational procedures are needed to augment parent report findings and identify targets for effective interventions. We examined(More)
BACKGROUND Youth with sickle cell disease (SCD) experience chronic symptoms that significantly interfere with physical, academic, and social-emotional functioning. Thus, to effectively manage SCD, youth and caregivers must work collaboratively to ensure optimal functioning. The goal of the current study was to examine the level of involvement in disease(More)
OBJECTIVE To conduct a multidimensional assessment of pain in children with sickle cell disease (SCD). Variables included parent and child reports of pain location and intensity, qualitative descriptors of pain, perceptions regarding the seriousness and severity of SCD, and environmental and emotional factors associated with pain. METHODS We replicated(More)
Although there is substantial literature documenting the challenges of pediatric sickle cell disease (SCD) for children and their parents, there is limited research identifying how parents prioritize their needs and use their social networks to manage information regarding their child's SCD in terms of physical and mental health. We examined parents'(More)