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  • Henrike Hannemann-Weber, Maura Kessel, Carsten D. Schultz
  • Medicine
  • Health policy
  • 2012 (First Published: 1 May 2012)
  • OBJECTIVES Centers of expertise (CoE) are vital to the care and treatment of patients with rare diseases and play a central role in generating medical and scientific knowledge. This study exploresContinue Reading
  • Henrike Hannemann-Weber, Maura Kessel, Karolina Budych, C. Schultz
  • Medicine
  • Implementation science : IS
  • 2011 (First Published: 1 December 2011)
  • BackgroundA rare disease is a pattern of symptoms that afflicts less than five in 10,000 patients. However, as about 6,000 different rare disease patterns exist, they still have significantContinue Reading