Maryann A Muckaden

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PURPOSE To develop an End of Life Care (EOLC) Policy for patients who are dying with an advanced life limiting illness. To improve the quality of care of the dying by limiting unnecessary therapeutic medical interventions, providing access to trained palliative care providers, ensuring availability of essential medications for pain and symptom control and(More)
BACKGROUND The uniqueness of adolescent and young adult (AYA) non-Hodgkin lymphomas (NHL) with respect to biology and treatment have largely remained unanswered due to marked heterogeneity in treatment, paucity of prospective, or retrospective studies and poor representation of AYA in clinical trials. This audit attempts to put forward the(More)
Recent advances in medical care have improved the survival of newborn babies born with various problems. Despite this death in the neonatal intensive care unit (NICU) is an inevitable reality. For babies who are not going to "get better," the health care team still has a duty to alleviate the physical suffering of the baby and to support the family.(More)
BACKGROUND It is important to ensure that minimum standards for palliative care based on available resources are clearly defined and achieved. AIMS (1) Creation of minimum National Standards for Palliative Care for India. (2) Development of a tool for self-evaluation of palliative care organizations. (3) Evaluation of the tool in India. In 2006, Pallium(More)
PURPOSE To audit referral practices of pediatric oncologists referred to specialist pediatric palliative care services. PATIENTS AND METHODS Retrospective review of medical case records of pediatric palliative care patients over a period of 5 years from January 1, 2010 to December 31, 2014. Descriptive summaries of demographic, clinical variables, and(More)
CONTEXT Assessment of dyspnea in patients with advanced cancer is challenging. Cancer Dyspnea Scale (CDS) is a multidimensional scale developed for the measurement of dyspnea. It is available only in Japanese, English, and Swedish and has not been validated before in the Indian languages. OBJECTIVE The objective was to describe the process of validation(More)
Indian Journal of Palliative Care ¦ Volume 23 ¦ Issue 2 ¦ April-June 2017<lb>122<lb>Introduction: Death is inevitable but the manner in which a person<lb>dies is fundamental to the person concerned and their nearest and<lb>dearest. The effects of poor care leading to death are distressing for<lb>patients and also have long term effects for those closest to(More)
The goal of this study was to evaluate the efficacy of temporary interstitial brachytherapy (BRT) for patients undergoing combined modality management of soft tissue sarcomas (STS). From January 1990 to December 2003, 155 adults 18–88 years of age (median = 42 years) with STS who had received BRT as part of locoregional treatment were included in this(More)
Nephroblastomas (Wilms’ tumour) are the most common solid malignancies in childhood, but extra-renal Wilms’ tumours are rare entities, and the diagnosis is made only after surgical intervention. However, the embryogenesis and the exact mechanism of occurrence of primary ERWTs is controversial, thereby presenting a number of unanswered questions of great(More)