Mary Joan Roach

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The purpose of this study was to systematically assess mobility issues from the point of view of persons with spinal cord injuries (SCIs), so as to guide clinicians, researchers, and developers of assistive technologies. A telephone survey was developed through focus groups and discussions with individuals with SCI and rehabilitation experts. Telephone(More)
OBJECTIVE To describe the relationship of multiple biographic, injury-related, and educational factors with employment outcomes after spinal cord injury (SCI). DESIGN Cross-sectional. SETTING Data were collected through 18 model SCI systems, a nationwide network of hospitals that treat approximately 14% of all SCIs in the United States. PARTICIPANTS A(More)
BACKGROUND Traditional literature regarding acquired bowel dysfunction for persons with spinal cord injury (SCI) has focused on clinical assessments of bowel dysfunction and bowel management programs. These studies make reference to the effects of bowel dysfunction on quality of life (QOL), but none systematically study the relationship. This study develops(More)
OBJECTIVES To describe the prevalence and demographic characteristics associated with cell telephone ownership and to investigate whether cell telephone ownership has a positive relationship with social integration. DESIGN Cross-sectional. SETTING Spinal Cord Injury (SCI) Model Systems. PARTICIPANTS Participants (N=7696) with traumatic SCI who were(More)
OBJECTIVE To examine factors associated with family satisfaction with end-of-life care in the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). DESIGN A prospective cohort study with patients randomized to either usual care or an intervention that included clinical nurse specialists to assist in symptom control(More)
OBJECTIVE To determine the prevalence of inadequate or severely deficient levels of vitamin D in patients with spinal cord injury (SCI) admitted to an inpatient rehabilitation service and to describe any associations between patient demographics and injury characteristics and vitamin D levels. DESIGN Retrospective case series. SETTING Academic inpatient(More)
OBJECTIVES To assess the relationship among depressed mood, physical functioning, and severity of illness and to determine the relationship between depressed mood and survival time, controlling for severity of illness, baseline functioning, and characteristics of patients. METHODS Prospective cohort study of data for 3529 seriously ill hospitalized adults(More)
Protection of human participants is a fundamental facet of biomedical research. We report the activities of a health service research study in which there were three institutional review boards (IRBs), three legal departments and one research administration department providing recommendations and mandating changes in the study methods. Complying with IRB(More)
OBJECTIVES To assess preference of reconstructive treatment of upper extremities in subjects with tetraplegia compared with preference of treatment of 3 other impairments and to determine the effect of subjects' characteristics on preference of upper-extremity reconstruction. DESIGN Survey. SETTING Two specialized spinal cord injury centers in the(More)
Study design:Multi-center, prospective, cohort study.Objectives:To assess the validity and reliability of the Spinal Cord Independence Measure (SCIM III) in measuring functional ability in persons with spinal cord injury (SCI).Setting:Inpatient rehabilitation hospitals in the United States (US).Methods:Functional ability was measured with the SCIM III(More)