Marilyn Kendall

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OBJECTIVE To compare the illness trajectories, needs, and service use of patients with cancer and those with advanced non-malignant disease. DESIGN Qualitative interviews every three months for up to one year with patients, their carers, and key professional carers. Two multidisciplinary focus groups. SETTING Community based. PARTICIPANTS 20 patients(More) Updated information and services can be found at: These include: References 25 online articles that cite this article can be accessed at: This article cites 13 articles, 7 of which can be accessed free(More)
OBJECTIVE To understand key challenges in researching end of life issues and identify ways of overcoming these. DESIGN Qualitative study involving in-depth interviews with researchers and focus groups with people affected by cancer. PARTICIPANTS An international sample of 32 researchers; seven patients with experience of cancer; and four carers in south(More)
OBJECTIVE To describe the experiences of illness and needs and use of services in two groups of patients with incurable cancer, one in a developed country and the other in a developing country. DESIGN Scotland: longitudinal study with qualitative interviews. Kenya: cross sectional study with qualitative interviews. SETTINGS Lothian region, Scotland, and(More)
BACKGROUND We set out to explore whether patients with life-threatening illnesses and their informal carers consider they experience significant spiritual needs, in the context of their overall needs, how spiritual concerns might vary by illness group and over the course of the illness, and how patients and their carers think they might be supported in(More)
BACKGROUND In most economically developed countries, patients, their informal and professional carers and policy makers are calling for more care in the community. OBJECTIVES To involve patients with cancer, and their carers, in designing a framework for providing effective cancer care in primary care. METHODS Two discussion groups comprising 18 people(More)
Typical trajectories of physical decline have been described for people with end-stage disease. It is possible that social, psychological, and spiritual levels of distress may also follow characteristic patterns. We sought to identify and compare changes in the psychological, social, and spiritual needs of people with end-stage disease during their last(More)
BACKGROUND Current models of post-treatment cancer care are based on traditional practices and clinician preference rather than evidence of benefit. OBJECTIVES To assess the feasibility of using a structured template to provide holistic follow-up of patients in primary care from cancer diagnosis onwards. METHODS A two-phase mixed methods action research(More)
BACKGROUND We previously facilitated the development of a service-user designed framework for providing proactive care for people with cancer in the community. OBJECTIVE To validate this framework in clinical practice. METHODS We used an action research approach, helping five diverse general practices in the South of Scotland to implement the care(More)