Marie P. Daniel

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The Academy of Medicine, Singapore (AMS) and the Ministry of Health (MOH) publish clinical practice guidelines to provide doctors and patients in Singapore with evidence-based guidance on managing important medical conditions. This article reproduces the introduction and executive summary (with recommendations from the guidelines) from the AMS-MOH clinical(More)
There is currently very little information available about the disabilities encountered by rare disease (RD) patients. Orphanet [http://www.orpha.net], the international database and portal on RDs and orphan drugs, has developed various projects to improve the knowledge and visibility of disabilities associated with RDs, and to provide tools to help the(More)
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