• Publications
  • Influence
Recommendations for returning genomic incidental findings? We need to talk!
The American College of Medical Genetics and Genomics recently issued recommendations for reporting incidental findings from clinical whole-genome sequencing and whole-exome sequencing. TheExpand
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Is Deidentification Sufficient to Protect Health Privacy in Research?
  • M. Rothstein
  • Medicine
  • The American journal of bioethics : AJOB
  • 9 September 2010
The revolution in health information technology has enabled the compilation and use of large data sets of health records for genomic and other research. Extensive collections of health records,Expand
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Expanding the Ethical Analysis of Biobanks
  • M. Rothstein
  • Business, Medicine
  • The Journal of law, medicine & ethics : a journal…
  • 1 March 2005
Biobanks are repositories of human biological materials collected for biomedical research. There are over 300 million stored specimens in the United States, and the number grows by 20 million perExpand
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Ethical, legal, and social implications of incorporating genomic information into electronic health records
The inclusion of genomic data in the electronic health record raises important ethical, legal, and social issues. In this article, we highlight these challenges and discuss potential solutions. WeExpand
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Currents in Contemporary Ethics GINA, the ADA, and Genetic Discrimination in Employment
  • M. Rothstein
  • Political Science, Medicine
  • The Journal of law, medicine & ethics : a journal…
  • 1 December 2008
The Genetic Information Nondiscrimination Act of 2008 (GINA) was signed into law on May 21, 2008, after a 13-year struggle in Congress. GINA prohibits genetic discrimination in employment and healthExpand
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Does Consent Bias Research?
Researchers increasingly rely on large data sets of health information, often linked with biological specimens. In recent years, the argument has been made that obtaining informed consent forExpand
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From SARS to Ebola: Legal and Ethical Considerations for Modern Quarantine
Quarantine remains an important part of the strategy for containing infectious diseases, especially when there is no vaccine or demonstrably effective treatment. Experience with SARS and, moreExpand
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  • PDF
Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider
As clinical genetics evolves, and we embark down the path toward more personalized and effective health care, the amount, detail, and complexity of genetic/genomic test information within theExpand
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Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations
Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. YetExpand
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  • PDF
Genetic Exceptionalism & Legislative Pragmatism
  • M. Rothstein
  • Political Science, Medicine
  • The Hastings Center report
  • 8 July 2005
Can passing antidiscrimination laws ever be a bad idea? Yes, if broad policy reform is abandoned in favor of genetic-specific legislation. But in spite of its serious flaws, both in concept and inExpand
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