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Co‐occurring conditions associated with FMR1 gene variations: Findings from a national parent survey
Parents enrolling in a national survey of families of children with fragile X (FX) reported whether each of their children had been diagnosed or treated for developmental delay or eight conditionsExpand
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Measuring Family Outcomes in Early Intervention: Findings from a Large-Scale Assessment
This article reports data from a large-scale assessment using the Family Outcomes Survey with families participating in early intervention. The study was designed to determine how families describeExpand
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Functional skills of individuals with fragile x syndrome: a lifespan cross-sectional analysis.
Parents of 1,105 male and 283 female children with fragile X syndrome described functional skill attainment in eating, dressing, toileting, bathing/hygiene, communication, articulation, and reading.Expand
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An Experimental Comparison of Computer-Mediated and Face-to-Face Focus Groups
TLDR
Conducting focus groups via computers is becoming an increasingly popular method for collecting data. Expand
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Development and Psychometric Validation of the Family Outcomes Survey-Revised
Few psychometrically valid scales exist to assess family outcomes and the helpfulness of early intervention. This article describes the development and psychometric properties of the Family OutcomesExpand
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Nonresponse Bias in a Mail Survey of Physicians
With the increased pressure on survey researchers to achieve high response rates, it is critical to explore issues related to nonresponse. In this study, the authors examined the effects ofExpand
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Methodology: U.S. News & World Report Best Hospitals 2013-14
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Motivators and deterrents to blood donation among Black South Africans: a qualitative analysis of focus group data
South Africa has a markedly skewed representation where the majority of blood (62%) is presently collected from an ethnically White minority. This study seeks to identify culturally specific factorsExpand
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Fire fighter fatality investigation and prevention program: Findings from a national evaluation
Firefighters are called on to rescue people and protect property under serious and hazardous conditions. Some 100 firefighters die each year on duty, and another 95,000 are injured. RecommendationsExpand
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Medication Utilization for Targeted Symptoms in Children and Adults With Fragile X Syndrome: US Survey
Objective: To identify the most common neurological and behavioral symptoms treated by medications in individuals with fragile X syndrome (FXS), factors associated with treatment variability, andExpand
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