• Publications
  • Influence
Adolescents with a chronic condition: challenges living, challenges treating
In this review, we aim to focus attention on the interaction between adolescents with chronic conditions and the health systems that support them. At least 12% of adolescents live with a chronicExpand
  • 481
  • 21
Cystic Fibrosis and Transition to Adult Medical Care
Transition of young adults with cystic fibrosis (CF) from pediatric to adult medical care is an important priority, because many patients are living well into their fourth decade, and by 2010 moreExpand
  • 180
  • 18
  • PDF
Shared decision-making to improve attention-deficit hyperactivity disorder care.
OBJECTIVE To examine the effect of a shared decision-making intervention with parents of children newly diagnosed with attention-deficit/hyperactivity disorder. METHODS Seven pediatriciansExpand
  • 59
  • 10
Impact of recent pulmonary exacerbations on quality of life in patients with cystic fibrosis.
OBJECTIVE To compare the health-related quality of life (HRQOL) of people with cystic fibrosis (CF) to the general population, and to determine the relationship between HRQOL and clinical andExpand
  • 262
  • 9
  • PDF
Transition to adult care: experiences and expectations of adolescents with a chronic illness.
BACKGROUND Effective means of transitioning adolescent patients with chronic illness from paediatric to adult medical care are poorly documented and supported by limited evidence. The purpose of thisExpand
  • 197
  • 9
Health Care Preferences and Priorities of Adolescents With Chronic Illnesses
Background. Efforts to make health care for adolescents with chronic illnesses more patient-centered must be grounded in an understanding and clear measures of adolescents' preferences andExpand
  • 151
  • 8
School Disconnectedness: Identifying Adolescents at Risk
Objective. School connectedness, or the feeling of closeness to school personnel and the school environment, decreases the likelihood of health risk behaviors during adolescence. The objective ofExpand
  • 247
  • 8
What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making
Background. With the increasing complexity of decisions in pediatric medicine, there is a growing need to understand the pediatric decision-making process. Objective. To conduct a narrative review ofExpand
  • 119
  • 6
Risk factors associated with surgical site infection after pediatric posterior spinal fusion procedure.
OBJECTIVE To identify risk factors associated with surgical site infection (SSI) after pediatric posterior spinal fusion procedure by examining characteristics related to the patient, the surgicalExpand
  • 118
  • 5