Lotte Krabbenborg

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M. A. Willemsen1
T. Kleefstra1
S. Van der Burg1
E. J. Kamsteeg1
1M. A. Willemsen
1T. Kleefstra
1S. Van der Burg
1E. J. Kamsteeg
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The use of whole exome sequencing (WES) for diagnostics of children with rare genetic diseases raises questions about best practices in genetic counselling. While a lot of attention is now given to pre-test counselling procedures for WES, little is known about how parents experience the (positive, negative, or inconclusive) WES results in daily life. To(More)
Engaging civil society actors as knowledgeable dialogue partners in the development and governance of emerging technologies is a new challenge. The starting point of this paper is the observation that the design and orchestration of current organized interaction events shows limitations, particularly in the articulation of issues and in learning how to(More)
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