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Despite the documented health benefits of physical exercise, there is a paradoxical, but small, risk of sudden cardiac arrest (SCA) and/or death (SCD) associated with exercise. Cardiovascular causes account for 75% of sportrelated deaths in young athletes, with SCA/SCD rates varying according to athlete age, gender, intensity of activity, race, and(More)
Functional Genomics and Translational Biology, Council on Quality of Care and Outcomes Cardiovascular Surgery and Anesthesia, Council on Epidemiology and Prevention, Council on Coordinating Committee, Council on Cardiovascular Disease in the Young, Council on on behalf of the American Heart Association Council on Clinical Cardiology, Advocacy Caplan, Gary(More)
The American Heart Association and the American make every effort to avoid any actual or potential co may arise as a result of an outside relationship or a p or business interest of a member of the writing members of the writing group are required to co Disclosure Questionnaire showing all such relatio perceived as real or potential conflicts of interest.(More)
Encouraging family communication is an integral component of genetic counseling; therefore, we sought to identify factors impacting communication to family members at risk for Hypertrophic Cardiomyopathy (HCM). Participants (N = 383) completed an online survey assessing: 1) demographics (gender, genetic test results, HCM family history, and disease(More)
The clinical expression of hypertrophic cardiomyopathy (HC) is undoubtedly influenced by modifying genetic and environmental factors. Lifestyle practices such as tobacco and alcohol use, poor nutritional intake, and physical inactivity are strongly associated with adverse cardiovascular outcomes and increased mortality in the general population. Before(More)
BACKGROUND Symptoms are among the most important factors impacting quality of life (QOL) in hypertrophic cardiomyopathy (HCM) patients, and reflect a poor prognosis. Whether emotional stress can trigger symptoms of chest pain, dyspnea, palpitations, and lightheadedness has not been described. METHODS Members of the Hypertrophic Cardiomyopathy Association(More)
Little is known about patients' views surrounding the ethical and legal aspects of managing pacemakers (PMs) and implantable cardioverter-defibrillators (ICDs) near the end of life. Patients with hypertrophic cardiomyopathy (HC) are at heightened risk of sudden cardiac death and are common recipients of such devices. Patients with HC recruited from the(More)
BACKGROUND Hypertrophic cardiomyopathy (HCM) is a genetic disease of the heart muscle that affects 1 in 500 people. HCM is highly heterogeneous in its clinical presentation and severity. HCM research has typically been carried out using hospital-based and referral populations. The Hypertrophic Cardiomyopathy Association (HCMA) is a patient support group(More)
  • Lisa Salberg
  • 2013
The Hypertrophic Cardiomyopathy Association is a 501c3 nonprofit organization founded in 1996 to serve the hypertrophic cardiomyopathy (HCM) community in matters of advocacy, support, and education. The Hypertrophic Cardiomyopathy Association monitors publications on HCM daily, and after review of the paper by Sreeram et al. (1) from Germany and the United(More)