Lisa Kinsley

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Fo r pe rs on al u se o nl y. Now 22 months old, ALSUntangled (www. has 315 twitter followers. Our NING consists of 72 ALS clinician scientists from across seven countries, participating in more than 30 active discussions. New discussions opened since our last publication include BuNaoGao (BNG), Dean Kraft, Dr. Shahriar Vaziritabar and ‘(More)
This qualitative study explored the reproductive decision-making process in individuals at 50% risk for familial amyotrophic lateral sclerosis (FALS) from families with a known genetic mutation. We spoke with 10 individuals utilizing a semi-structured interview. Participants had a first-degree relative with FALS, made reproductive decisions in the past 30(More)
The mechanism of Aimspro remains unproven; if it is an immunomodulator and/or a modulator of sodium channels, it theoretically could be useful in ALS. A single, detailed but significantly flawed case report documents slowing in decline of certain respiratory functions in a patient claiming to have ALS, who started Aimspro shortly after bipap. Based upon(More)
BACKGROUND Huntington's disease (HD) is an autosomal dominant neurodegenerative disorder. In most cases the disease is inherited from a parent, although a considerable number of affected persons have no reported family history of the disease. While CAG repeat length is negatively correlated with age of symptom onset, variability exists suggesting that other(More)
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