Lisa Casselman

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that will impact the creation and operation of neurological disease registries in Canada. This document is not meant to provide legal or ethical advice. In order to ensure that applicable laws and organizational policies are adhered to in an appropriate manner, it is recommended that legal advisors and relevant organizational representatives be consulted.(More)
BACKGROUND Clinical registries capture patient information contingent upon successful recruitment and retention of patients who will consent to participation. To accomplish this requires the elements that affect patient recruitment. For example, failure to adequately engage physicians or other healthcare professionals can have as much impact on recruitment(More)
issues related to data collection and registry configuration. When designing a disease registry, it is important to consider the registry’s purpose and target population as this will influence the type of data, source(s) of data, and the manner in which it is collected. A data dictionary defining the specific data elements to be collected is key to ensuring(More)
We report a case of a tuberothalamic artery (TTA) infarction causing Horner syndrome (HS) but without causing the classic associated neuropsychological symptoms. A classic TTA infarction is a neurological entity with neuropsychological symptoms due to the involvement of the anterior part of the thalamus, and rarely associated with HS, due to the involvement(More)
BACKGROUND Patient registries represent a well-established methodology for prospective data collection with a wide array of applications for clinical research and health care administration. An examination and synthesis of registry stakeholder perspectives has not been previously reported in the literature. METHODS To inform the development of future(More)
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