• Publications
  • Influence
Clinical Trials and Medical Care: Defining the Therapeutic Misconception
A key component of informed consent to participate in medical research includes understanding that research is not the same as treatment.
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Therapeutic misconception in early phase gene transfer trials.
Many subjects in early phase clinical trials expect to benefit in some way from the research intervention. It is understandable that people hope for improvement in their condition, no matter what theExpand
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Ethical Principles Guiding Research on Child and Adolescent Subjects
Understanding the ethical principles that should guide research with child and adolescent participants is an essential task for researchers. Principles do not always yield final or uncontroversialExpand
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Healing Skills for Medical Practice
We thought we could cure everything, but it turns out we can only cure a small amount of human suffering. The rest of it needs to be healed. Rachel Naomi Remen At the center of medical ethics is theExpand
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The many meanings of care in clinical research.
The conduct of clinical research often involves two distinguishable sets of relationships: the researcher-subject relationship, and the clinician-patient relationship. Some scholars argue that beingExpand
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Medical humanities.
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The Teaching of Ethics and Moral Values in Teaching. Some Contemporary Confusions.
Ethics has become fashionable. The past decade has witnessed a proliferation of ethics courses and workshops in public and professional schools. Institutes and professional societies now regularlyExpand
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A prospective study of the impact of patient preferences on life-sustaining treatment and hospital cost.
OBJECTIVES Ethicists advise that life-sustaining treatment decisions should be made in keeping with patient preferences. Until recently, there has been little systematic study of the impact ofExpand
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Parents' Online Portrayals of Pediatric Treatment and Research Options
Parents of seriously ill children face difficult decisions when standard therapies are limited or ineffective. In their search for information, they may turn to websites created by other parentsExpand
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