• Publications
  • Influence
Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children
TLDR
It is concluded that genetic counselors are supportive of targeted testing of high‐risk infants and prefer voluntary population screening with consent to mandatory NBS for conditions that challenge Wilson and Jungner criteria.
Female Adolescents' Knowledge of Bone Health Promotion Behaviors and Osteoporosis Risk Factors
TLDR
Female adolescents, who are in a crucial period of their lives for accruing bone mineral, had limited knowledge of the risk factors for osteoporosis, calcium-rich foods and dietary calcium requirements, and the type of exercise needed to maximize their bone mineral density.
Revision of the Osteoporosis Knowledge Test
TLDR
The Revised OKT (2012), developed in 2012, is a comprehensive instrument reflecting current research and assesses osteoporosis knowledge of adults and demonstrated internal consistency.
Comparison of consumers' views on electronic data sharing for healthcare and research
TLDR
Responsiveness to the public's concerns regarding their health information is a pre-requisite for patient-centeredness and Responsiveness to these needs, rather than mere reliance on Health Insurance Portability and Accountability Act (HIPAA), may improve support of data networks.
Technology and Caregiving: Emerging Interventions and Directions for Research
TLDR
A conceptual framework for identifying and addressing the challenges that may need to be overcome to effectively apply technology-enabled solutions for family caregivers is proposed and a summary of research questions and issues that form a framework for global research priorities are summarized.
pSCANNER: patient-centered Scalable National Network for Effectiveness Research
This article describes the patient-centered Scalable National Network for Effectiveness Research (pSCANNER), which is part of the recently formed PCORnet, a national network composed of learning
Exploration of the e-patient phenomenon in nursing informatics.
TLDR
Examining the e-patient phenomenon will help nurse informaticists evaluate, design, develop, and determine the effectiveness of information systems used by e-patients.
Systematic Review of Hospital Readmissions Among Patients With Cancer in the United States
TLDR
Clinical efforts to reduce the substantial readmission rates among adults with cancer may target high‐rate conditions, infection prevention, proactive management of nausea and vomiting, and nurse‐led care coordination interventions for older adult patients with multiple comorbid conditions and advanced cancer.
Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics
TLDR
Online approaches to engaging large numbers of stakeholders are a promising and efficient adjunct to in-person meetings and associated with increased willingness to use OMD again.
Citizen science to further precision medicine: from vision to implementation
TLDR
Current barriers and needed changes to facilitate broad adoption of a citizen science-based approach to the practice of precision medicine in clinical care and research are identified.
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