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BACKGROUND Establishing the effectiveness of patient decision aids (PtDA) requires evidence that PtDAs improve the quality of the decision-making process and the quality of the choice made, or decision quality. The aim of this paper is to review the theoretical and empirical evidence for PtDA effectiveness and discuss emerging practical and research issues(More)
OBJECTIVE To develop a set of quality criteria for patient decision support technologies (decision aids). DESIGN AND SETTING Two stage web based Delphi process using online rating process to enable international collaboration. PARTICIPANTS Individuals from four stakeholder groups (researchers, practitioners, patients, policy makers) representing 14(More)
PURPOSE The purpose of this study was to measure the degree to which informed women chose mastectomy, and to reveal their reasons for this choice. PATIENTS AND METHODS This was a prospective cohort study of patients radiographically and pathologically eligible for either mastectomy or breast-conserving surgery (BCS; n = 125). Participants completed(More)
BACKGROUND A high quality decision requires that patients who meet clinical criteria for surgery are informed about the options (including non-surgical alternatives) and receive treatments that match their goals. The aim of this study was to evaluate the psychometric properties and clinical sensibility of a patient self report instrument, to measure the(More)
BACKGROUND The purpose of this paper is to examine the acceptability, feasibility, reliability and validity of a new decision quality instrument that assesses the extent to which patients are informed and receive treatments that match their goals. METHODS Cross-sectional mail survey of recent breast cancer survivors, providers and healthy controls and a(More)
In the past few decades, patient-centeredness has gained in importance, 1,2 and policies to promote patient-centered care have been increasing. 3 Several different models of patient-centered care have been described. Although these models vary on their specific definitions and dimensions, they all emphasize the importance of facilitating the engagement of(More)
BACKGROUND Guidelines for colorectal cancer screening recommend that patients be informed about options and be able to select preferred method of screening; however, there are no existing measures available to assess whether this happens. METHODS Colorectal Cancer Screening Decision Quality Instrument (CRC-DQI) includes knowledge items and patients' goals(More)
BACKGROUND Women diagnosed with early stage (I or II) breast cancer face a highly challenging decision - whether or not to undergo adjuvant chemotherapy. We developed a decision quality instrument for chemotherapy for early stage breast cancer and sought to evaluate its performance. METHODS Cross-sectional, mailed survey of recent breast cancer survivors,(More)
BACKGROUND Visit preparation interventions help patients prepare to meet with a medical provider. Systematic reviews have found some positive effects, but there are no reports describing implementation experiences. Consultation Planning (CP) is a visit preparation technique in which a trained coach or facilitator elicits and documents patient questions for(More)