Karen J Luken

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OBJECTIVES Given the lack of screening mammography studies specific to women with disabilities, we compared reasons offered by women with and without disabilities for not scheduling routine screening visits. METHODS We surveyed women in the Carolina Mammography Registry aged 40 to 79 years (n = 2970), who had been screened from 2001 through 2003 and did(More)
BACKGROUND The need for evidence-based health promotion interventions for women with intellectual and developmental disabilities is critical. However, significant barriers impede them from participating in research, including those related to recruitment and obtaining informed consent. METHODS This study describes a procedure for the recruitment and(More)
Peer Education and Advocacy through Recreation and Leadership (PEARL) is an intervention based on principles of peer helping and psychosocial rehabilitation. Trained peers working as recreation advocates provided support to peers in psychosocial rehabilitation settings. Advocates promoted peer involvement in recreation and community activities as a strategy(More)
OBJECTIVE We examined receipt of cervical cancer screening and determinants of screening for women with intellectual disabilities in one Southeastern state. METHODS Using medical records data from 2006 through 2010 for community-dwelling women with intellectual disabilities who were 18-65 years of age (n=163), we employed descriptive and bivariate(More)
BACKGROUND Prior research has described general barriers to breast cancer screening for women with disabilities (WWD). We explored specific accommodations described as necessary by WWD who have accessed screening services, and the presence of such accommodations in community-based screening programs. METHODS We surveyed WWD in the Carolina Mammography(More)
BACKGROUND Little information exists on the receipt of mammography by African American women with intellectual disabilities. Given the high rates of mortality from breast cancer among African American women and low screening rates among women with intellectual disabilities, it is important to understand the health screening behavior of this population. (More)
BACKGROUND Evidence-based health promotion programs developed and tested in the general population typically exclude people with disabilities. To address this gap, a set of methods and criteria were created to adapt evidence-based health promotion programs for people with disabilities. In this first study, we describe a framework for adapting evidence-based(More)
Women Be Healthy 2 is a course designed to teach women with intellectual disabilities about cervical and breast cancer screenings and to help them become more active partners in their health care. An evaluation of Women Be Healthy found that the course was effective in increasing the knowledge of women with intellectual disabilities related to breast health(More)
to promote the health and wellness of persons with disabilities in North Carolina. The Center serves as a national research, information, and technical assistance center that evaluates, develops, and promotes accessible and universal design in housing, public and private facilities, and consumer products. We would like to thank the following individuals for(More)
National Center on Birth Defects and Developmental Disabilities. The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC. to promote the health and wellness of persons with disabilities in North Carolina. Suggested citation: North Carolina Office on Disability and Health (2004). Removing barriers:(More)