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BACKGROUND A recent report from the British Nuffield Council on Bioethics associated 'emerging biotechnologies' with a threefold challenge: 1) uncertainty about outcomes, 2) diverse public views on the values and implications attached to biotechnologies and 3) the possibility of creating radical changes regarding societal relations and practices. To address(More)
BACKGROUND Public involvement activities (PIAs) may contribute to the governance of ethically challenging biomedical research and innovation by informing, consulting with and engaging the public in developments and decision-making processes. For PIAs to capture a population's preferences (e.g. on issues in whole genome sequencing, biobanks or genome(More)
BACKGROUND The European Union's (EU) Clinical Trials Directive was replaced by an EU-Regulation as of 2016. The policy revision process was subject to a formal impact assessment exercised by the European Commission (EC) from 2008 to 2014. Following the EU principles of Good Governance, deliberation with stakeholders was an integral part of this impact(More)
The authors studied the merit and significance of the role of the clinical nurse specialist (CNS) by collecting quantitative and qualitative data documenting the activities performed in each of the four role components: practitioner, educator, scholar, and consultant. This follow-up study continues to substantiate the impact of the CNS role on quality(More)
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