John Tasioulas

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The intense controversy sparked by the recent American College of Medical Genetics and Genomics (ACMG) recommendations1 on genetic incidental findings is hardly surprising or unwarranted. The recommendations offer concrete proposals on a topic that has been debated in the context of research2,3 but that has received inadequate attention in clinical(More)
In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically(More)
The future will see autonomous machines acting in the same environment as humans, in areas as diverse as driving, assistive technology, and health care. Think of self-driving cars, companion robots, and medical diagnosis support systems. We also believe that humans and machines will often need to work together and agree on common decisions. Thus hybrid(More)
In this paper, we address the complex relationship between big data and human rights. Because this is a vast terrain, we restrict our focus in two main ways. First, we concentrate on big data applications in scientific research, mostly health-related research. And, second, we concentrate on two human rights: the familiar right to privacy and the less(More)
Two important trends are discernible in the contemporary philosophy of human rights. According to foundationalism, human rights have importantly distinctive normative grounds as compared with other moral norms. An extreme version of foundationalism claims that human interests do not figure among the grounds of human rights; a more moderate version restricts(More)
munity,especially for thedonor’s family, andmust includepossible responses to incidental findings. This means there is a responsibility to consider potential downstream effects (eg, heritable diseases) on the families of those who donate their bodies. Issues suchas theappropriateacquisition, storage,use, and destruction of the generated information also(More)
The article defends four broad theses: that repentance is the intrinsically appropriate response to moral wrongdoing (Part II); that legal punishment may seek to facilitate repentance and, when repentance is in evidence prior to the completion of a justified punishment, that it can be a legitimate ground for the merciful reduction of the offender’s sentence(More)