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Commentary The intense controversy sparked by the recent American College of Medical Genetics and Genomics (ACMG) recommendations 1 on genetic incidental findings is hardly surprising or unwarranted. The recommendations offer concrete proposals on a topic that has been debated in the context of research 2,3 but that has received inadequate attention in(More)
volume 31 NumBeR 9 SePTemBeR 2013 nature biotechnology process. PLR is enabled by online media that cross national borders, allowing it to achieve international and global participation. PLR may be driven by individuals motivated by noncommercial goals, with the result that it can more easily focus on diseases that have been neglected by commercially(More)
In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically(More)
The future will see autonomous machines acting in the same environment as humans, in areas as diverse as driving, assis-tive technology, and health care. Think of self-driving cars, companion robots, and medical diagnosis support systems. We also believe that humans and machines will often need to work together and agree on common decisions. Thus hybrid(More)
In this paper, we address the complex relationship between big data and human rights. Because this is a vast terrain, we restrict our focus in two main ways. First, we concentrate on big data applications in scientific research, mostly health-related research. And, second, we concentrate on two human rights: the familiar right to privacy and the less(More)
munity,especially for thedonor’s family, andmust includepossible responses to incidental findings. This means there is a responsibility to consider potential downstream effects (eg, heritable diseases) on the families of those who donate their bodies. Issues suchas theappropriateacquisition, storage,use, and destruction of the generated information also(More)
This article offers an integrated account of two strands of global health justice: health-related human rights and health-related common goods. After sketching a general understanding of the nature of human rights, it proceeds to explain both how individual human rights are to be individuated and the content of their associated obligations specified. With(More)
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