Jan-Paul van den Berg

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INTRODUCTION In the Netherlands, rehabilitation care plays an important role in the symptomatic and palliative treatment of ALS patients. However, until 1999 there were no guidelines or practice parameters available for the management of ALS. Therefore, the Dutch protocol for rehabilitative management in ALS was developed. We describe the development(More)
Our objective was to estimate the economic burden of patients with amyotrophic lateral sclerosis (ALS) and to examine the effect of treatment in a multidisciplinary ALS treatment centre versus general care on costs and to describe differences in costs according to clinical characteristics. In a cross-sectional study 208 patients with ALS and their(More)
BACKGROUND In the Netherlands, rehabilitation medicine plays an important role in the symptomatic and palliative treatment of ALS patients. Detailed information about the actual care of ALS patients in the Netherlands and about the attitude of consultants in rehabilitation medicine towards the management of this disease was lacking. OBJECTIVE To obtain(More)
Symptoms of nocturnal hypoventilation may negatively influence the quality of life (QoL) of ALS patients long before respiratory failure ensues. Non-invasive mechanical ventilation (NIV) is considered a treatment option for nocturnal hypoventilation. The primary objective of NIV is improving quality of life (QoL). It may also prolong life by several months.(More)
The results presented in this review are based on my thesis presented at the University of Utrecht on 23 January 2006. The main aim of this thesis was to examine the effects of multidisciplinary ALS care on the Quality of Life (QoL) in patients with ALS and their caregivers and to examine the effects of coping styles on the QoL of patients and their(More)
At the present, it is unknown how restraint and binge eating/counterregulation are exactly related. Earlier studies on this relationship suffer from two main shortcomings: the studies are all correlational in nature or could not rule out the contribution of confounding variables such as weight loss. The present study investigated whether a break of(More)
Since application of the International Classification of Impairments, Disabilities, and Handicaps (ICIDH) in its full form proved to be impractical, the use of selected parts, or of instruments based on the ICIDH, has been suggested. We have assessed the inter- and intra-rater reliability of disability ratings using a screening instrument, based on the D(More)
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