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Family perspectives on end-of-life care at the last place of care.
CONTEXT Over the past century, nursing homes and hospitals increasingly have become the site of death, yet no national studies have examined the adequacy or quality of end-of-life care inExpand
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The clinical course of advanced dementia.
BACKGROUND Dementia is a leading cause of death in the United States but is underrecognized as a terminal illness. The clinical course of nursing home residents with advanced dementia has not beenExpand
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Driven to tiers: socioeconomic and racial disparities in the quality of nursing home care.
Nursing home care is currently a two-tiered system. The lower tier consists of facilities housing mainly Medicaid residents and, as a result, has very limited resources. The nearly 15 percent of U.S.Expand
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The concept of quality of life of dying persons in the context of health care.
Considerable research has addressed quality of life and quality of care; however, it has not addressed adequately the experiences of patients and their families at the end of life. Health care mayExpand
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A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal
OBJECTIVES To improve end-of-life decision making and reduce the frequency of a mechanically supported, painful, and prolonged process of dying. DESIGN A 2-year prospective observational studyExpand
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Validation of Toolkit After-Death Bereaved Family Member Interview.
The purpose of this study was to examine the reliability and validity of the Toolkit After-Death Bereaved Family Member Interview to measure quality of care at the end of life from the uniqueExpand
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Change in end-of-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000, 2005, and 2009.
IMPORTANCE A recent Centers for Disease Control and Prevention report found that more persons die at home. This has been cited as evidence that persons dying in the United States are using moreExpand
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Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel.
CONTEXT Despite increasing interest in advance care planning (ACP) and previous ACP descriptions, a consensus definition does not yet exist to guide clinical, research, and policy initiatives. Expand
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The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation.
BACKGROUND Studies suggest that a majority of elderly patients would want to undergo cardiopulmonary resuscitation (CPR) if they had a cardiac arrest. Yet few studies have examined their preferencesExpand
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Consensus statement: Palliative and supportive care in advanced heart failure.
BACKGROUND A consensus conference was convened to define the current state and important gaps in knowledge and needed research on "Palliative and Supportive Care in Advanced Heart Failure." Expand
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