J. Kitzinger

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In W v M, family members made an application to the Court of Protection for withdrawal of artificial nutrition and hydration from a minimally conscious patient. Subsequent scholarly discussion has centred around the ethical adequacy of the judge's decision not to authorise withdrawal. This article brings a different perspective by drawing on interviews with(More)
Anonymising qualitative research data can be challenging, especially in highly sensitive contexts such as catastrophic brain injury and end-of-life decision-making. Using examples from in-depth interviews with family members of people in vegetative and minimally conscious states, this article discusses the issues we faced in trying to maximise participant(More)
This paper addresses, from a socio-legal perspective, the question of the significance of law for the treatment, care and the end-of-life decision making for patients with chronic disorders of consciousness. We use the phrase 'chronic disorders of consciousness' as an umbrella term to refer to severely brain-injured patients in prolonged comas, vegetative(More)
Some brain injured patients are left in a permanent vegetative state, i.e., they have irreversibly lost their capacity for consciousness but retained some autonomic physiological functions, such as breathing unaided. Having discussed the controversial nature of the permanent vegetative state as a diagnostic category, we turn to the question of the patients'(More)
Qualitative researchers attempting to protect the identities of their research participants now face a multitude of new challenges due to the wealth of information once considered private but now readily accessible online. We will draw on our research with family members of people with severe brain injury to discuss these challenges in relation to three(More)
Throughout affluent societies there are growing numbers of people who survive severe brain injuries only to be left with long-term chronic disorders of consciousness. This patient group who exist betwixt and between life and death are variously diagnosed as in 'comatose', 'vegetative', and, more recently, 'minimally conscious' states. Drawing on a nascent(More)
The media are crucial players in the construction of, and communication about, risk. Yet their role is often under-theorised, and sometimes misrepresented or parodied. In particular, the media are accused of routine sensationalism. Journalists are blamed for exaggerating risk, 'whipping up hysteria' and distorting reality. Academic studies of the media,(More)
—This paper presents a fusion between discrete-event systems specification (DEVS) and intelligent tools from soft computing. DEVS provides a robust and generic environment for modeling and simulation applications employing single workstation, distributed, and real-time platforms. Soft computing is a consortium of tools for natural intelligence stemming from(More)
Seventy six senior academics from 11 countries invite The BMJ's editors to reconsider their policy of rejecting qualitative research on the grounds of low priority. They challenge the journal to develop a proactive, scholarly, and pluralist approach to research that aligns with its stated mission Trisha Greenhalgh professor of primary care health sciences,(More)
PURPOSE To examine family perceptions of physiotherapy provided to relatives in vegetative or minimally conscious states. METHOD Secondary thematic analysis of 65 in-depth narrative interviews with family members of people in vegetative or minimally conscious states. RESULTS Families place great significance on physiotherapy in relation to six(More)