Ivana Truccolo

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In Italy, educational programs for cancer patients are currently provided by the national government, scientific societies, and patient advocate organizations. Several gaps limit their effectiveness, including the lack of coordinated efforts, poor involvement of patient feedback in the planning of programs, as well as a lack of resources on innovative(More)
Following the model of other international oncology units, a framework was developed to create a special unit for adolescents and young adults (Youth Area) within a cancer research hospital in Italy by defining relevant parameters to improve personalized healthcare delivery and the reduction of the impact of the disease on 14–24 year old patients. The(More)
BACKGROUND Educational intervention represents an essential element of care for cancer patients; while several single institutions develop their own patient education (PE) programs on cancer, little information is available on the effective existence of PE programs at the level of research and care institutes. In Italy such institutes--Istituti di Ricovero(More)
BACKGROUND The Open Archive Initiative (OAI) refers to a movement started around the '90 s to guarantee free access to scientific information by removing the barriers to research results, especially those related to the ever increasing journal subscription prices. This new paradigm has reshaped the scholarly communication system and is closely connected to(More)
This paper aims to describe the creation of an institutional repository of scientific literature at the Istituto Superiore di Sanità (ISS, Italian National Institute of Health), the leading centre for biomedical research in Italy. This initiative is the core of a Project aimed at aggregating the published scientific works of Italian researchers in the(More)
BACKGROUND The use of complementary and alternative medicine (CAM) among cancer patients is widespread and mostly self-administrated. Today, one of the most relevant topics is the nondisclosure of CAM use to doctors. This general lack of communication exposes patients to dangerous behaviors and to less reliable information channels, such as the Web. The(More)
Introduction: Web users have turned into information producers who share with others contents and opinions. The literature reports that patients use the Web for searching health information, and also for sharing their feelings and experience with others experiencing the same condition. Peer-to-peer communication has relevant effects on patients' decisions(More)
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