Inez D. de Beaufort

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We studied the experiences of children identified by family screening who were found to be a mutation carrier for a genetic cardiovascular disease (Long QT Syndrome (LQTS), Hypertrophic Cardiomyopathy (HCM), Familial Hypercholesterolemia (FH)). We addressed the (a) manner in which they perceive their carrier status, (b) impact on their daily lives, and (c)(More)
OBJECTIVE To describe a case of deliberate termination of life (euthanasia) in intensive care. DESIGN Case report and review of the literature. PATIENT A 56-yr-old man experienced a bilateral hemorrhage in the pontine structures and the medulla oblongata, resulting in a locked-in syndrome. The patient was taught to communicate by eye opening. On day 10(More)
Should patients with Parkinson's disease participate in research involving stem cell treatments? Are induced pluripotent stem cells (iPSC) the ethical solution to the moral issues regarding embryonic stem cells? How can we adapt trial designs to best assess small numbers of patients in receipt of invasive experimental therapies? Over the last 20 years there(More)
The aim of this study was to determine the effects of appearance-related surgery on psychosocial functioning during adolescence. To this end, changes in bodily attitudes and appearance-related burdens in adolescents undergoing corrective (for aesthetic deformities) and reconstructive (for congenital or acquired deformities) surgery were compared with those(More)
INTRODUCTION It is important to be aware of the ethical pitfalls in programmes to prevent overweight and obesity, such as stigmatization, blaming the victim and reinforcement of health inequalities. In this article, we present an ethical framework for facilitating a structured analysis to the extent to which a programme prevents overweight or obesity is(More)
BACKGROUND Preconception care is a promising new approach to improve the health of future children through primary intervention. Although most women have a positive attitude towards preconception care, women often do not seek preconception care for themselves. OBJECTIVE To explore women's hesitancy to seek preconception counselling. METHODS An(More)
Many products to lose weight are presented on the market. The products are advertised with two 'arguments': the health-argument: obesity and overweight are dangerous for your health, and the beauty argument: obesity and overweight make you ugly. The authors raise ethical questions with regard to the promises made and discuss the following arguments: the(More)