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BACKGROUND Survey research including multiple health indicators requires brief indices for use in cross-cultural studies, which have, however, rarely been tested in terms of their psychometric quality. Recently, the EUROHIS-QOL 8-item index was developed as an adaptation of the WHOQOL-100 and the WHOQOL-BREF. The aim of the current study was to test the(More)
OBJECTIVE The aim was to test the performance of a cross-culturally developed disease-generic quality of life (QoL) measure for children with chronic diseases in a multinational clinical study. STUDY DESIGN AND SETTING The study was conducted in pediatric hospitals across seven European countries in a sample of 1,153 children with seven chronic(More)
As quality of life (QoL) research is increasingly focusing on children and adolescents with haemophilia, the need for both age-appropriate and disease-specific assessment tools becomes apparent. Therefore, a set of questionnaires measuring QoL in children and adolescents with haemophilia was simultaneously developed in six languages within the European(More)
OBJECTIVE This study evaluates self- and proxy-reported health-related quality of life (HRQOL) in children and adolescents with autism spectrum disorders (ASD). The study also compares HRQOL in ASD patients with a healthy control sample and a psychiatric reference sample. METHOD 42 children and adolescents (39 male, mean age: 12.7 ± 2.6 years, mean IQ:(More)
In ländlichen Regionen mit einer geringen Bevölkerungsdichte und (drohenden) Lücken in der wohnortnahen Versorgung sind regionale Versorgungskonzepte mit telemedizinischen Funktionalitäten eine reale Option zur Unterstützung der medizinischen Versorgung. Eine telemedizinische Verbindung kann dabei zwischen Leistungserbringern (z. B. Krankenhäusern) erfolgen(More)
PURPOSE We evaluated health related quality of life of pediatric patients with nonneurogenic urinary incontinence and determined potential influencing factors. Also, health related quality of life results in our sample were compared to those of other chronic childhood health conditions. MATERIALS AND METHODS This cross-sectional study was done at 3(More)
Objectives The aim of this study was to shorten the Health-Related Quality of Life (HRQL) DISABKIDS Chronic Generic Measure (DCGM) for children and adolescents and to test its reliability, construct, and external validity. Study design 1153 children and adolescents (8–16 years) with chronic health conditions (asthma, arthritis, epilepsy, cerebral palsy,(More)
PURPOSE The aim of this study was to examine the relationship between all established DISABKIDS modules and the International Classification of Functioning, Health and Disability (ICF). The DISABKIDS questionnaires were developed as a tool set of both condition-generic and condition-specific modules for assessing the health-related quality of life of(More)
Among several advances in quality of life (QOL) assessment development, such as cross-cultural comparability of measurements, inclusion of more specific target populations, and assessment on different levels of QOL generality, economy of measurement has become of increasing importance. As a consequence, construction of short forms and indices of original(More)
BACKGROUND The quality of life after brain injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI overall scale (QOLIBRI-OS),(More)