Guillermo Fiebelkorn

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that will impact the creation and operation of neurological disease registries in Canada. This document is not meant to provide legal or ethical advice. In order to ensure that applicable laws and organizational policies are adhered to in an appropriate manner, it is recommended that legal advisors and relevant organizational representatives be consulted.(More)
RELEVANT LITERATURE Methods of Validation Several methods can be used to assess completeness of registry data. Completeness of registration can serve as an indicator of registry effectiveness an ideal registry will capture all cases of a given disease within a defined population. Completeness is defined as the proportion of diagnosed cases that are(More)
This section of the guideline discusses considerations when planning and designing a registry that will require linkage to administrative data. Administrative data may include hospitalization and surgical or other procedure data; physician billing data; vital statistics data (e.g. births, deaths); prescription and other pharmacy data; long-term care(More)
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