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Nurses deliver care to people with various forms of chronic illnesses and conditions. Some chronic conditions, such as paraplegia, are visible while others, such as diabetes, are invisible. Still others, such as multiple sclerosis, are both visible and invisible. Having a chronic illness or condition and being different from the general population subjects(More)
BACKGROUND Little is known about the experience of living with a rare disease and how people with rare diseases cope with not only the disease but also the reactions of others. Scleroderma is a rare chronic connective tissue disease that results in fibrotic changes involving all or some organs of the body. The two types of scleroderma are systemic(More)
Concurrent with the recent enthusiasm for qualitative research in the health fields, an energetic call for methods by which to synthesize the knowledge has been generated on various substantive topics. Although there is an emerging literature on meta-analysis and metasynthesis, many authors overestimate the simplicity of such approaches and erroneously(More)
Traditionally, researchers have studied and interpreted the chronic illness experience through a lens of either stigma or normalization, but rarely both simultaneously. When chronic illness is examined through a stigma lens, the findings tend to focus on the manner in which the individual suffers from the stigma. When it is examined through a normalization(More)
This randomized controlled trial was designed to determine whether practising stress management techniques would decrease activity and promote psychosocial functioning in inflammatory bowel disease patients. Eighty ambulatory adults received a pre-intervention interview, at which time baseline data about disease activity and psychosocial functioning were(More)
While there has been speculation in the literature about what life with inflammatory bowel disease (IBD) is like, patients have not, prior to this study, been asked about their perceptions. This paper reports the results of a study which measured the impact of having IBD on eight lifestyle variables. Eighty IBD patients completed the Inflammatory Bowel(More)
Anecdotally, people with inflammatory bowel disease (IBD) report that some foods make them feel better and some foods make them feel worse. This paper reports about the relationship between food habits and reactions to foods in people with IBD. A database was designed to incorporate the date of data collection, the IBD disease, food habits, the quantity(More)
The reproducibility of food frequency questionnaires varies widely. Since reports of past intake are known to be biased toward the present and the forces of supply and demand affect what people eat at a given point in time, the questionnaire may capture an atypical snapshot of consumption rather than the intended view of unusual consumption. The consumption(More)
A pilot study was conducted to test whether or not the time of data collection affected subjects' responses to a dietary questionnaire and could therefore bias the results of a study. A 117 item food frequency questionnaire was administered to 43 subjects--16 in the summer and 27 in the winter. The summer and winter consumption per person per month was(More)
  • G Joachim
  • 2000
The purpose of this study was to assess the reactions of people with IBD to foods consumed. A database was created to capture the season of data collection, the disease, the food, and the subject's reaction to each food. A 122-item food list was used. Sixty patients with IBD (n = 33 persons with Crohn's disease, n = 27 persons with ulcerative colitis)(More)