Frans V P M Ewals

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Many children with profound intellectual and multiple disabilities (PIMD) now reach adulthood. The aim of this study was to elicit parents' experiences with the transfer from pediatric to adult medical care. A convenience sample of 131 Dutch parents of young people with PIMD (16-26 years) completed a web-based questionnaire. Twenty-two percent of the young(More)
Recently the Health Council of the Netherlands published a comprehensive report which incorporates juridical, ethical, medical and social aspects directing the judgement and decision-making regarding contraception in people with an intellectual disability. Although professional responsibility is in the hands of medical practitioners, medical guidelines to(More)
BACKGROUND End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions. AIMS The objective of this research was to investigate the experiences of the parents and the involved physician during the end-of-life(More)
BACKGROUND AND AIMS The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors influence their decisions. METHODS AND PROCEDURES We searched MEDLINE, EMBASE, CINAHL and PsycINFO. The(More)
In the Netherlands the specialization Intellectual Disability Medicine started in 2000. The main reasons for its existence are the unmet health needs of people with intellectual disability. The discipline has developed rapidly, from general practitioner-plus to a specialist in comorbidity next to the general practitioner. The specialization takes 3 years.(More)
* What responsibilities and options do physicians have regarding contraception, pregnancy and parenthood in people with mental disability? The issue encompasses the assessment of parenting capability and mental competence, and options for supporting responsible parenthood and preventing irresponsible parenthood. * Parenting capability is a combined trait of(More)
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